An Educational Resource and Exercise Video for Children and Their Parents

This video features stretching exercises that are an important part of rehabilitation for JM patients. The video was created for Muscular Dystrophy patients but still applies to JM patients.

Please check with your doctor before starting any stretching or exercise program.

Natalia in her Team Natalia Shirt

Natalia’s Story

Natalia is seven years old, and in January 2021, she began experiencing pain. Everyday tasks were difficult. Natalia’s parents, Lindsay and Matt, reached out to

Required Minimum Distribution, Giving

Required Minimum Distribution

You can send your Required Minimum Distribution (RMD) to a charity using a strategy called aQualified Charitable Distribution (QCD). A QCD allows individuals aged 70½

Nathanael’s Story

Nathanael was an active 7-year-old. In the summer of 2014, he played baseball under the Southern California sun, and that’s when the rash started. “He

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