This video features stretching exercises that are an important part of rehabilitation for JM patients. The video was created for Muscular Dystrophy patients but still applies to JM patients.
Please check with your doctor before starting any stretching or exercise program.
In January, Cure JM presented a town hall on the achievements of 2023 and goals for 2024.
In this presentation, Dr. Laura Tasan explains the importance of exercise for JM patients. Since JM children suffer from endurance and fatigue issues, exercise for
Like other teens new to the JM journey, Catie Beth Caldwell and Madi Cook were two individuals who felt alone at the beginning of their journeys. Catie Beth was diagnosed just before the Covid-19 pandemic took hold of the world as we knew it. With this came feelings of isolation and loneliness. These emotions were commonplace for many teens but were only compounded by teens new to a rare disease diagnosis. These first years of the “new normal” were difficult to navigate.
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