Resilient Parenting

Parenting a child with a rare disease comes with unique challenges—but you don’t have to navigate them alone. Join us for a powerful and practical Town Hall event with Ronda Thorington, MA, LPC, a Licensed Professional Counselor and Parent Coach specializing in supporting families facing medical uncertainty. The evening will include: A Guided Introduction to the Resilient Parent Toolkit. Practical Strategies to manage stress and foster deeper family connections. Actionable Tools for weekly resilience planning, medical appointment prep, and self-care. A Supportive Space to ask questions, share experiences, and find encouragement. If you’re a parent or caregiver seeking practical, compassionate guidance, this Town Hall is for you.

Sydney’s Story

Spring break should be about fun and relaxation. Sandi and her husband Zack expected their trip to Mexico would be the same. Of course, taking

Chan Zuckerberg Initiative Update. Cure JM Partner Researchers Achieve Three Major Breakthroughs

Cure JM Partner Researchers Unveil Three Major Breakthroughs

Last year, Cure JM and a team of collaborative researchers received a prestigious $2 million grant from the Chan Zuckerberg Initiative to advance our understanding of juvenile myositis (JM). The goal? To discover new markers in the blood that could lead to more precise, personalized care for children with JM. We are excited to share some of the early results from this research

Affordable and Accessible Treatments for JM

Affordable and Accessible Treatments for JM

Two special guest speakers, Michelle Vogel, MPA, IV Solutions RX, and Laurel Cherwin, BSN, RN, IgCN, Octapharma, shared information on navigating affordable treatments and care for JM patients.

Join Cure JM

Membership is free and we’ll connect you with a network of support, encouragement, and resources.

Cure JM supports families, patients, and the juvenile myositis research community.

Interested in DIY fundraising but need help?

We’re here to help!

To have your fundraiser matched, add “DIY Match” in the memo of your online gift or check.