Connects & Conversations

We are excited to share upcoming regional and virtual community events that support our mission.

This page is your single stop for “being in the know” on upcoming regional events, online patient and family support meetings, and educational symposiums happening in person and online.

Join us in connecting with other families!

Online Event

Thursday, November 20, 2025, at 7:00 PM Eastern

The Cure JM Grandparent Connect group is the platform for learning and bonding for all grandparents of patients living with juvenile myositis. Connect with other grandparents and learn how to provide support to families along their JM journeys.

Online Event

Are you a mom navigating the challenges of raising a child with a rare disease? You’re not alone. At Cure JM, we are a “family of families,” and we understand that the journey of caring for a child with juvenile myositis comes with unique challenges, uncertainties, and triumphs.

That’s why we invite you to join Moms’ Connect, a dedicated space where you can find understanding, encouragement, and connection with other moms who truly understand what you’re going through.

Our Moms’ Connect calls provide a safe and supportive environment where you can openly share your experiences, ask questions, offer advice, and connect with other incredible moms. Whether you’re looking for emotional support, practical tips for managing JM, or simply a group of women who “get it,” this is the place for you. 

In-Person Event

Sunday, December 14, 2025 at 3:00 PM Pacific
Join fellow Cure JM families on December 14th from 3:00 pm until 8:00 pm (Pacific) at Fanta Sea Yachts, 4215 Admiralty Way, Marina del Rey, CA 90292 for free party benefiting Cure JM Foundation and Children’s Hospital Los Angeles. Families will enjoy food, holiday cheer and a visit from Santa while cruising the bay on a beautiful yacht. Be sure to be on time so you don’t miss the boat! Typically the ship will come back to dock in the middle of the event so you don’t have to stay on the full five hours. This party is graciously hosted by a friend of Cure JM at no cost to families. 
 
Questions? Contact betsy.leon@curejm.org

Online Event

Are you a mom navigating the challenges of raising a child with a rare disease? You’re not alone. At Cure JM, we are a “family of families,” and we understand that the journey of caring for a child with juvenile myositis comes with unique challenges, uncertainties, and triumphs.

That’s why we invite you to join Moms’ Connect, a dedicated space where you can find understanding, encouragement, and connection with other moms who truly understand what you’re going through.

Our Moms’ Connect calls provide a safe and supportive environment where you can openly share your experiences, ask questions, offer advice, and connect with other incredible moms. Whether you’re looking for emotional support, practical tips for managing JM, or simply a group of women who “get it,” this is the place for you. 

Online Event

Being a dad of a child with a rare disease can be overwhelming—but you don’t have to navigate it alone. At Cure JM, we understand the ups and downs that come with caring for a child with juvenile myositis, and we know how valuable it is to connect with others who get it.

Dads’ Connect is a space for fathers to share experiences, swap practical tips, ask questions, and support one another through the challenges of JM. Whether you’re looking for guidance, encouragement, or simply a community of dads who understand, this is your place to connect and recharge.

Register Here ->

Online Event

Thursday, January 22, 2026, at 3:00 PM Eastern

The Cure JM Grandparent Connect group is the platform for learning and bonding for all grandparents of patients living with juvenile myositis. Connect with other grandparents and learn how to provide support to families along their JM journeys.

Online Event

Thursday, January 22, 2026, at 3:00 PM Eastern

The Cure JM Grandparent Connect group is the platform for learning and bonding for all grandparents of patients living with juvenile myositis. Connect with other grandparents and learn how to provide support to families along their JM journeys.

Online Event

Are you a mom navigating the challenges of raising a child with a rare disease? You’re not alone. At Cure JM, we are a “family of families,” and we understand that the journey of caring for a child with juvenile myositis comes with unique challenges, uncertainties, and triumphs.

That’s why we invite you to join Moms’ Connect, a dedicated space where you can find understanding, encouragement, and connection with other moms who truly understand what you’re going through.

Our Moms’ Connect calls provide a safe and supportive environment where you can openly share your experiences, ask questions, offer advice, and connect with other incredible moms. Whether you’re looking for emotional support, practical tips for managing JM, or simply a group of women who “get it,” this is the place for you. 

Interested in DIY fundraising but need help?

We’re here to help!

To have your fundraiser matched, add “DIY Match” in the memo of your online gift or check.