May 2024 Symposium

The Spring Cure JM Medical Symposium in partnership with Duke University happened May 23rd, 2024, virtually, with presentations from world-leading researchers and clinicians on advancements in basic research, translational studies, and best practice clinical care in juvenile dermatomyositis.

For clinicians, researchers, and healthcare professionals unable to attend the event, we are honored to share the full virtual symposium recording. This video features presentations in order, with the recording separating each presentation topic into YouTube chapters.

3.0 CME (pending credits are available through Duke University by watching the recording).

Additional peer support resources for clinicians of juvenile myositis patients and families can be found at www.curejm.org/clinicians.

For questions regarding the Cure JM Medical Symposium, please email Andrew Heaton, CSO, Cure JM Foundation, at andrew.heaton@curejm.org.

2025 Family Conference Finding Hope

Erin and Madi’s Story: Finding Hope at the Cure JM Family Conference

In February 2023, Erin Hicks and her daughter Madi faced a life-altering moment. After a visit to the National Institutes of Health in Seattle, Madi, a vibrant 12-year-old soccer player from Kansas City, Missouri, was diagnosed with juvenile dermatomyositis (JDM). “We walked out feeling overwhelmed and lost,” Erin recalls. Research fueled panic as Madi’s condition worsened, her energy fading on the soccer field. Hope was slipping away.

Vamorolone FAQ

Vamorolone FAQs in JM

With the looming FDA approval of the drug vamorolone in Duchenne muscular dystrophy, there are questions surrounding the drug’s status for trials in juvenile myositis. We have consulted with JM experts on the potential implications of a pending approval for the drug in another disease and what this currently means for JM patients living in the U.S.

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Cure JM supports families, patients, and the juvenile myositis research community.

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