Join us for this powerful Town Hall featuring Dr. Aviya Levy, a nationally recognized pediatric rheumatologist and mental health advocate, as she explores practical strategies for managing anxiety and promoting emotional well-being in children with JM and their caregivers. Drawing on her expertise in narrative medicine and her work at the forefront of JM mental health research, Dr. Levy will offer insights into the emotional impact of living with a chronic illness and share evidence-based tools to help families cope, connect, and thrive—no matter where they are on their JM journey.
The Loneliness We Don’t Talk About
By Ronda Thorington, MA, LCP Summary:In rare disease caregiving, loneliness often hides in plain sight between appointments, responsibilities, and the need to stay strong. This
