Join us for this powerful Town Hall featuring Dr. Aviya Levy, a nationally recognized pediatric rheumatologist and mental health advocate, as she explores practical strategies for managing anxiety and promoting emotional well-being in children with JM and their caregivers. Drawing on her expertise in narrative medicine and her work at the forefront of JM mental health research, Dr. Levy will offer insights into the emotional impact of living with a chronic illness and share evidence-based tools to help families cope, connect, and thrive—no matter where they are on their JM journey.
What Was Lost in the Fire: The Other Side of Resilience for Siblings of Children with Rare Disease
Siblings of children with rare disease are often described as resilient, empathetic, and strong beyond their years, and they are. But behind those strengths are
