Emotional and Mental Health Resources: Teens and Young Adults

Besides the normal turmoil of adolescence, receiving a diagnosis of Juvenile Myositis can present your child with more stress due to changes in body image, medical visits, medications, etc.

It is important to recognize the warning signs of depression and anxiety. Adjusting to life with Juvenile Myositis is difficult, but we are here to help.

Dr. Polly Livermore
Paediatric Rheumatology Senior Nurse Academic from Great Ormond Street Hospital, London

“From my recent UK study asking children and young people to talk about their experience with JM, we showed how important it is for health care professionals to actually ask the children and teens themselves how they are coping. JM patients told us that they often feel different from their peers and siblings and suffer from feelings of uncertainty as the illness, medication side effects, and future pathways into adulthood can be unpredictable. Thanks, Cure JM, for helping to support these children, young people, and families all over the world!”

The Potential of JAKs in Fighting JM

In our June 2024 “Ask the Doc” Town Hall, Dr. Julie Paik joins in a Q&A session to shed light on what JAK inhibitors are, how they work in JM, when parents might consider discussing JAKs as a treatment option, and the pros and cons of their use.

The Potential of CAR-T Therapy in Myositis.

The Very Real Potential of CAR-T Therapy in Myositis

We expected to hear promising news about the potential for CAR-T therapy to treat myositis at the Global Conference on Myositis (GCOM).

What we heard was more than promising—it was astounding.

What if I told you that there was a therapy that would “reset” the immune system—virtually eliminating the autoimmune response in myositis that causes inflammation, pain, muscle weakness, and other JM conditions of which we are all too familiar.

Helping Parents & Kids When They Express High Emotional Distress

This expert-led presentation is for parents about how to help their kids and themselves when their kids express high levels of emotional distress. Our presenters will talk about ways parents can calm themselves, share tips for talking to kids with age-appropriate information, and know when to find help from a professional. There will be a Q&A session immediately following the presentation.

Join Cure JM

Membership is free and we’ll connect you with a network of support, encouragement, and resources.

Cure JM supports families, patients, and the juvenile myositis research community.

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