IVIG – What Parents and Caregivers Need to Know

Town Hall April 2024, IVIG, Tory, Cherwin, Vogel, Alderfer

Hear from a panel of four experts about IVIG, including important tips for a successful IVIG journey.

Presenters include: VP of Patient Advocacy Michelle Vogel, MPA at IV Solutions RX, Heather Tory, MD, MPH, CPPS, a Pediatric Rheumatologist and Associate Chief Quality and Patient Safety Officer at Connecticut Children’s, Laurel Cherwin, BSN, RN, IgCN an immunology Clinical Nurse Educator, Medical Affairs Octapharma and Kristine Alderfer, President, Cure JM Board of Directors.

The panel will discuss a variety of must-know information on successful IVIG treatment days, navigating the system, at-home vs. outpatient options, pre & post-treatment checklists, and more.

Why I Walk- Sammie Fish

Why I Walk: Steps Toward a Cure with Sammie Fish

Sammie Fish was 14 when juvenile dermatomyositis (JDM, a rare form of juvenile myositis (JM) changed her life in 2017. A doctor’s warning that she might never reach remission, tied to a lifetime of medication, shook her world. But Sammie, now 21, didn’t back down. Today, she’s a college grad, a new teacher in her dream job, and Co-Chair of Cure JM’s Ohio Chapter alongside her mom. She walks for herself, for kids like her, and for a cure. That’s why hundreds of Cure JM families and friends across the nation join Walk Strong, because every step pushes us toward a JM-free future

Ronda Thorington, April Town Hall Web Size, Updated for Resources

Resilient Parenting

Parenting a child with a rare disease comes with unique challenges—but you don’t have to navigate them alone. Join us for a powerful and practical

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Cure JM supports families, patients, and the juvenile myositis research community.

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