IVIG – What Parents and Caregivers Need to Know

Town Hall April 2024, IVIG, Tory, Cherwin, Vogel, Alderfer

Hear from a panel of four experts about IVIG, including important tips for a successful IVIG journey.

Presenters include: VP of Patient Advocacy Michelle Vogel, MPA at IV Solutions RX, Heather Tory, MD, MPH, CPPS, a Pediatric Rheumatologist and Associate Chief Quality and Patient Safety Officer at Connecticut Children’s, Laurel Cherwin, BSN, RN, IgCN an immunology Clinical Nurse Educator, Medical Affairs Octapharma and Kristine Alderfer, President, Cure JM Board of Directors.

The panel will discuss a variety of must-know information on successful IVIG treatment days, navigating the system, at-home vs. outpatient options, pre & post-treatment checklists, and more.

Ask The Doc: Why Exercise and Nutrition Are Important In JM with Brian Feldman MD

Ask The Doc: Why Exercise and Nutrition Are Important In JM

We are honored to share this insightful presentation and Q&A on the importance of exercise and nutrition in treating juvenile myositis with Dr. Brian Feldman of The Hospital for Sick Children and the Cure JM Clinical Care Network.

What role does exercise and nutrition play in JM treatment? When should JM patients be cleared for exercise? What effects do exercise and nutrition have on disease outcomes?

Nathanael’s Story

Nathanael was an active 7-year-old. In the summer of 2014, he played baseball under the Southern California sun, and that’s when the rash started. “He

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