One of the ways you can help your children cope with juvenile myositis is by giving them a sense of control over their doctor visits and treatments.
Giving children a checklist makes them a part of the process and helps them to remember to address any concerns they might have.
You can use these checklists “as is” or customize them for your child and medical situation.
Download checklists in a customizable format for your child!
Alexandra grew up in Philadelphia. At eight years old, she was diagnosed with juvenile dermatomyositis. Her first symptom was pain in her cuticles whenever she
A task that seemed daunting 20 years ago, to change the world for patients diagnosed with juvenile myositis, is now within our reach.
The Spring Cure JM Medical Symposium in partnership with Duke University happened May 23rd, 2024, virtually, with presentations from world-leading researchers and clinicians on advancements in basic research, translational studies, and best practice clinical care in juvenile dermatomyositis.
Membership is free and we’ll connect you with a network of support, encouragement, and resources.
To have your fundraiser matched, add “DIY Match” in the memo of your online gift or check.
