Emotional Health Recognized as Vital Component of JDM Care

Caring for a child with juvenile myositis (JM) goes beyond managing flares and medications—it means supporting their whole well-being, including mental and emotional health. Research shows that children with chronic illnesses like JM are at a significantly higher risk for anxiety, depression, and emotional distress. These challenges can affect not just day-to-day life, but also treatment outcomes and long-term health

Online Surveys for JM Patients and their Families

Tablet with a Cure JM survey on screen

Complete an online survey to help our researchers better understand juvenile myositis and its effect on JM patients. Most surveys only take 10 to 15 minutes to complete, but the information researchers receive is invaluable.

Cure JM Partner Researchers Unveil Three Major Breakthroughs

Chan Zuckerberg Initiative Update. Cure JM Partner Researchers Achieve Three Major Breakthroughs

Last year, Cure JM and a team of collaborative researchers received a prestigious $2 million grant from the Chan Zuckerberg Initiative to advance our understanding of juvenile myositis (JM). The goal? To discover new markers in the blood that could lead to more precise, personalized care for children with JM. We are excited to share some of the early results from this research

Cure JM-Funded Researcher Uncovers New Biomarkers

Cure JM Partner Researcher Uncovers New Biomarkers. Fionnuala McMorrow. University of Bath, UK

With your financial support, Cure JM is proud to have funded Fionnuala McMorrow, a Postgraduate Research Student in the Department of Life Sciences at the University of Bath, to embark on a critical research project. Fionnuala’s team analyzed blood samples from the UK to investigate two specific biomarkers (anti-CCAR1 and anti-Sp4) recently identified in U.S. patients with JDM and related conditions

Breakthrough Discovery: Misbehaving Mitochondria Linked to Juvenile Dermatomyositis

Research Update: misbehaving Mitochondria Linked to Juvenile Dermatomyositis. Dr. Christian Lood

The generous support of our community has been instrumental in funding groundbreaking research this year, led by Dr. Christian Lood at the University of Washington and Cure JM’s Center of Excellence at Seattle Children’s Hospital. Dr. Lood’s team has identified calcified mitochondria in the muscle tissue of JDM patients with calcinosis – a finding that sheds new light on understanding JDM

The Potential of JAKs in Fighting JM

The Potential of JAKS in Fighting JM

In our June 2024 “Ask the Doc” Town Hall, Dr. Julie Paik joins in a Q&A session to shed light on what JAK inhibitors are, how they work in JM, when parents might consider discussing JAKs as a treatment option, and the pros and cons of their use.

Cabaletta Bio Presents Promising Early Data on CAR-T Therapy for Myositis

Early Promising Data Presented in Car-T for Myositis

We expected to hear promising news about the potential for CAR-T therapy to treat myositis at the Global Conference on Myositis (GCOM).

What we heard was more than promising—it was astounding.

What if I told you that there was a therapy that would “reset” the immune system—virtually eliminating the autoimmune response in myositis that causes inflammation, pain, muscle weakness, and other JM conditions of which we are all too familiar.

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