Volunteer Spotlight- Alexandra Hackney

Meet Alexandra Hackney, a young adult who battled JM for 13 years and is now using her own experience to provide hope, inspiration, and coping skills to newly diagnosed teens and young adults.

Alexandra supports others affected by juvenile myositis as a Peer-Support Representative for patients aged 18-30. She also serves as one of the volunteer leaders of Cure JM’s newly formed Advocates Council for young adult patients, making her voice heard as new clinical trials and treatments are planned.

We are so grateful for Alexandra’s efforts to move our mission for future generations of juvenile myositis patients. Click below to learn more about Alexandra and her inspiring story.

Read Her Story

Read an exciting update from Alexandra

JM Moms (care givers) Facebook group image

Chapter Facebook Groups

Connecting with families can be a great source of knowledge and support. To connect with other families in your region, find your area below or contact Betsy Leon at info@curejm.org.

Affordable and Accessible Treatments for JM

Affordable and Accessible Treatments for JM

Two special guest speakers, Michelle Vogel, MPA, IV Solutions RX, and Laurel Cherwin, BSN, RN, IgCN, Octapharma, shared information on navigating affordable treatments and care for JM patients.

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Membership is free and we’ll connect you with a network of support, encouragement, and resources.

Cure JM supports families, patients, and the juvenile myositis research community.

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