Volunteer Spotlight- Alexandra Hackney

Meet Alexandra Hackney, a young adult who battled JM for 13 years and is now using her own experience to provide hope, inspiration, and coping skills to newly diagnosed teens and young adults.

Alexandra supports others affected by juvenile myositis as a Peer-Support Representative for patients aged 18-30. She also serves as one of the volunteer leaders of Cure JM’s newly formed Advocates Council for young adult patients, making her voice heard as new clinical trials and treatments are planned.

We are so grateful for Alexandra’s efforts to move our mission for future generations of juvenile myositis patients. Click below to learn more about Alexandra and her inspiring story.

Read Her Story

Read an exciting update from Alexandra

Anna Ramsey – “Doing Something About It”

Anna Ramsey has lived with juvenile myositis for most of her adolescent and adult life. Over the years Anna has been actively involved in Cure JM as a fundraiser, an advocate, and most recently the first ever patient on the Board of Directors.

Volunteering Speaks Volumes

Are you eager to make a meaningful impact and connect with a community committed to an important cause? The Cure JM Foundation welcomes passionate volunteers like you! Whether you can spare just a few moments or have more time to give, your dedication can greatly advance our mission.

Volunteer Spotlight- Kristine Alderfer

Kristine has been involved in Cure JM through volunteer roles for many years, and her involvement has become a family affair, as her daughter Katherine is a patient advocate for others with the disease.

Join Cure JM

Membership is free and we’ll connect you with a network of support, encouragement, and resources.

Cure JM supports families, patients, and the juvenile myositis research community.

Interested in DIY fundraising but need help?

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