Patient Advocates Council
The Cure JM Patient Advocates Council is a forum for connection between young adult patients aged 18-30 to participate in the advancement of Cure JM’s mission.
All adults living with JM are invited to join the Advocates Council. Please contact Nicky Geskos at nicky.geskos@curejm.org to be added to our invitation list.
We, as patients, know first-hand how treatments affect our lives, what resources are important to us and our families, and other valuable insights.
Our aim is to contribute our time and talents to advancing Cure JM’s mission to find better treatments and a cure while supporting patients and families in the process.
Our Mission
To connect with other young adults. By connecting with other adults, and learning their stories, we can ensure Cure JM’s mission is moving forward with the best interests of the patients they serve.
To support younger patients. By sharing our experiences, we hope to help enhance the resources and support available to the next generation of pediatric patients and teens.
To contribute to the understanding of juvenile myositis. By informing family members and supporters of our firsthand experience, we can ensure that decisions are made in the best interest of patients.
To move research forward. By participating in meetings with researchers and industry representatives, clinical trials, and other initiatives, we aim to have a role in the future of juvenile myositis research.
Council officers
Maddy Coffey
Chair, Advocates Council
Director, Cure JM Board of Directors
Anna Ramsey
Chair Emeritus, Advocates Council