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Breaking New Research: What You Need to Know

Nov 5 Town Hall

In our November Town Hall, “Breaking New Research: What You Need to Know,” leading pediatric rheumatology experts Dr. Susan Kim, Dr. Sara Sabbagh, and Clinical Research Coordinator Tyler Sorensen share highlights from the latest advances in juvenile myositis research and care presented at the American College of Rheumatology Annual Meeting—the largest gathering of rheumatologists in the world.

Viewers also learn about Cure JM’s first-ever Clinical Trial Readiness Boot Camp and how it is preparing participants for upcoming groundbreaking clinical trials in juvenile myositis.

Plus, Executive Director Jim Minow highlights breaking research news and what it means for JM families.

Love Letter to a grandparent

Love Letter to My Grandparents

Dear NaNa & PaPa, I appreciate all the love you have given me throughout my life. From the very beginning, you have been my biggest supporters, and

Cure JM Partner Researcher Uncovers New Biomarkers. Fionnuala McMorrow. University of Bath, UK

Cure JM-Funded Researcher Uncovers New Biomarkers

With your financial support, Cure JM is proud to have funded Fionnuala McMorrow, a Postgraduate Research Student in the Department of Life Sciences at the University of Bath, to embark on a critical research project. Fionnuala’s team analyzed blood samples from the UK to investigate two specific biomarkers (anti-CCAR1 and anti-Sp4) recently identified in U.S. patients with JDM and related conditions

IVIG: What Families Need to Know

Learn about IVIG (immunoglobulin therapy administered by vein). This session features Dr. Fatma Dedeoglu of Boston Children’s Hospital, Huub Kreuwel PhD, of Octapharma Plasma, and patient advocate, Michelle Vogel, of CSI Pharmacy.

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