Upcoming Events - Online & In-Person
We are excited to share upcoming regional and virtual community events that support our mission.
This page is your single stop for “being in the know” on upcoming regional events, online patient and family support meetings, and educational symposiums happening in person and online.
Join us in connecting with other families!
Online Event
Are you a mom navigating the challenges of raising a child with a rare disease? You’re not alone. At Cure JM, we are a “family of families,” and we understand that the journey of caring for a child with juvenile myositis comes with unique challenges, uncertainties, and triumphs.
That’s why we invite you to join Moms’ Connect, a dedicated space where you can find understanding, encouragement, and connection with other moms who truly understand what you’re going through.
Our Moms’ Connect calls provide a safe and supportive environment where you can openly share your experiences, ask questions, offer advice, and connect with other incredible moms. Whether you’re looking for emotional support, practical tips for managing JM, or simply a group of women who “get it,” this is the place for you.
Online Event
The Cure JM Grandparent Connect group is the platform for learning and bonding for all grandparents of patients living with juvenile myositis. Connect with other grandparents and learn how to provide support to families along their JM journeys.
Online Event
Are you a mom navigating the challenges of raising a child with a rare disease? You’re not alone. At Cure JM, we are a “family of families,” and we understand that the journey of caring for a child with juvenile myositis comes with unique challenges, uncertainties, and triumphs.
That’s why we invite you to join Moms’ Connect, a dedicated space where you can find understanding, encouragement, and connection with other moms who truly understand what you’re going through.
Our Moms’ Connect calls provide a safe and supportive environment where you can openly share your experiences, ask questions, offer advice, and connect with other incredible moms. Whether you’re looking for emotional support, practical tips for managing JM, or simply a group of women who “get it,” this is the place for you.
Online Event
The Cure JM Grandparent Connect group is the platform for learning and bonding for all grandparents of patients living with juvenile myositis. Connect with other grandparents and learn how to provide support to families along their JM journeys.
In-Person Event
Cure JM’s Pittsburgh Chapter is excited to invite you to a Cure JM Family Day at UPMC Children’s Hospital. Join other families navigating juvenile myositis for a fun and informative event with doctors from our Cure JM Clinical Care Network in the Rangos Conference Center. There will be separate fun and supervised activities for kids while parents, grandparents, and other adult family members are in educational sessions with the doctors. There will be time to connect with both the pediatric rheumatology team and other JM families. Lunch will be provided.
Online Event
Join our Advocates Council Meeting where we invite young adults to share their experiences and move forward ideas to support Cure JM’s mission to improve treatments and quality of life for all JM patients. Your voice matters! Please register and share your thoughts with us.
In-Person Conference
Cure JM is excited to invite you to join us at Back Bay High School (Multipurpose Room) 390 Monte Vista Avenue Costa Mesa, CA 92627 from 12:00 pm until 4:00 pm. The Cure JM Regional Conference is a fun and educational event where you will learn about current juvenile myositis research and best practices from the Cure JM Clinical Care Network doctors and other esteemed doctors. You will also have the opportunity to meet other families that are just like you.
