Regional & Virtual Events

We are excited to share upcoming regional and virtual community events that support our mission.

This page is your single stop for “being in the know” on upcoming regional events, online patient and family support meetings, and educational symposiums happening in person and online.

Join us in connecting with other families!

Chapter Facebook Groups
Two Grandparents laughing and smiling at Cure JM conference

Virtual Event

Grandparent Council Meeting

Thursday, May 23, 2024 03:00 PM EST

We invite you to join our next Grandparent Council Zoom meeting on Thursday, May 23rd, 2024. 

Connect with other grandparents and learn how to provide support to families along their JM journeys.

RSVP Here

Virtual Event

Advocates Council Call

Sunday, May 26, 2024 at 5:00 PM Eastern

Join our Advocates Council Meeting where we invite young adults to share their experiences and move forward ideas to support Cure JM’s mission to improve treatments and quality of life for all JM patients. Your voice matters! Please register and share your thoughts with us.

Register Here

Regional Event

Pickleball Fundraiser and Walk Event

Saturday, June 1, 2024 at Las Colinas Middle School
The Joy Family will be hosting a Walk Event-Pickleball tournament at Las Colinas. You can do one or both! Pickleball has set times for each division, but you can come and walk anytime. Come meet a local family and support better treatments, improved quality of life, and a cure for all kids diagnosed with JDM!                                              
RSVP Here

Regional Event

Cure JM Family Day - Pittsburgh

Saturday, October 19, 2024
Cure JM’s Clinical Care Network is excited to invite you to Cure JM Family Day in Pittsburgh.  Join other JM families for a fun and informative event with doctors from our Cure JM Clinical Care Network. There will be separate fun and supervised activities for kids as well as a teen’s room while parents, grandparents, and other adult family members are in educational sessions with the doctors. There will be time to connect with both the doctors and other families and a social event to close out the day.

More to come.

RSVP Here

Interested in DIY fundraising but need help?

We’re here to help!

To have your fundraiser matched, add “DIY Match” in the memo of your online gift or check.