Looking Ahead to 2025: A Year of Hope, Progress, and Advancement for Cure JM

Join us as we hear from Jim Minow, Dr. Andrew Heaton, and Shannon Malloy as we start a new year; a brighter future emerges for Cure JM, thanks to the unwavering dedication of our incredible community. Your extraordinary commitment to funding groundbreaking research continues to drive us forward. Gather with us in celebrating the strides we’ve made together and explore the remarkable impact of your support. Together, we’ll set our sights on even more remarkable achievements in the coming year. Here’s to a future filled with hope, progress, and continued success toward better treatments and a cure.



IVIG: What Families Need to Know

Learn about IVIG (immunoglobulin therapy administered by vein). This session features Dr. Fatma Dedeoglu of Boston Children’s Hospital, Huub Kreuwel PhD, of Octapharma Plasma, and patient advocate, Michelle Vogel, of CSI Pharmacy.

Balancing Work and Caregiving: Strategies for Working Parents of Children with Juvenile Myositis

Balancing Work and Caregiving: Strategies for Working Parents of Children with Juvenile Myositis

Balancing the demands of a career with the responsibilities of caregiving is a challenging task for any parent. For those with a child diagnosed with juvenile myositis (JM), a rare autoimmune disease affecting children, the challenge is heightened. Juggling work commitments while providing the necessary care and support for a child with JM can be taxing. In this article, we hope to provide you with a few effective strategies and insights to help working parents navigate this delicate balance.

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