Research Volunteers and Assistance Needed
Help researchers find the cause and a cure for JM by volunteering for these important studies:
The Psychosocial Impact of Juvenile Dermatomyositis on Pediatric Patients and Parents
Researchers from Palo Alto University are seeking volunteers to study how caring for a child with JDM impacts family functioning and parental psychological health. Participants must register by March 15, 2013. Click here for more information.
New Treatment for Calcinosis of Dermatomyositis
The Departments of Dermatology and Rheumatology at the George Washington University Medical Faculty Associates are conducting a 24 week study involving laser and a topical medication called sodium thiosulfate for treating superficial calcinosis, or calcium deposits in the skin, in individuals with adult or juvenile dermatomyositis who have not responded to other treatments. Participants must be between the ages of 18-65 years, have stable disease which is mildly active or in remission, and have failed at least one therapy for superficial calcinosis. The study consists of 8-10 treatments of laser and topical medication during the course of the study. Assessments, questionnaires, blood testing, imaging, and an optional skin biopsy will be performed. Participants will receive $25.00 per visit. There is no charge for the treatment and diagnostic tests. For enrollment call 1-202-741-2230.
Twin/Sibling Study
The National Institutes of Health is seeking research subjects from the JM community. Click here to see how your family can help.
Myorisk Study
Doctors at the National Institutes of Health are conducting pioneering research into the environmental risk factors that could lead to myositis. Click here to see how your family can help.
Environmental Exposures and Disease Flare in Adult and Juvenile Dermatomyositis and Polymyositis
George Washington University is seeking adult or juvenile dermatomyositis or polymyositis patients for an Internet–based anonymous survey. Click here to learn more.
