Support for Families Living with Juvenile Myositis

Resources for Parents and Patients

Resource

Resource

Home IVIG: A Family Perspective

Medically Reviewed by Dawn Wahezi, MD, MS on January 26, 2026. Cure JM shares family experiences to support informed conversations between families and their care teams. Intravenous

Mental Health Matters: The Loneliness We Don't Talk About

The Loneliness We Don’t Talk About

By Ronda Thorington, MA, LCP Summary:In rare disease caregiving, loneliness often hides in plain sight between appointments, responsibilities, and the need to stay strong. This

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