Balancing the demands of a career with the responsibilities of caregiving is a challenging task for any parent. For those with a child diagnosed with
Juvenile myositis, including juvenile dermatomyositis and juvenile polymyositis, is a group of rare and life-threatening autoimmune diseases, in which the body’s immune system attacks its
Planning a trip or vacation can be challenging, especially when you have a child with juvenile myositis. With spring break and summer break just around
Recently, Cure JM’s Jim Minow was able to attend the Global Conference for Myositis. This conference was not only informational, but was a most impressive
Since it is Rare Disease Month, we would like to take a moment and shine the spotlight on some of our amazing JM warriors.
First, a few terms to know when talking about Myositis Specific AutoAntibodies. So why do we talk about Myositis Specific Autoantibodies? We know that JDM
Here are some ideas shared with us by JM grandparents on how how to best support their grandchild, siblings, and family.
One common issue that we hear about from our families is that after diagnosis their child has trouble falling asleep or staying asleep. This can
Despite battling juvenile dermatomyositis (JDM) as a child, Alex Hackney never envisioned becoming a marathon runner, let alone completing prestigious races like the Chicago and
Two special guest speakers, Michelle Vogel, MPA, IV Solutions RX, and Laurel Cherwin, BSN, RN, IgCN, Octapharma, shared information on navigating affordable treatments and care
You may have heard about yesterday’s FDA ruling, which approved vamorolone as an alternative steroid for use in Duchenne muscular dystrophy.
Vamorolone is a
In January, Cure JM presented a town hall on the achievements of 2023 and goals for 2024.
Membership is free and we’ll connect you with a network of support, encouragement, and resources.
To have your fundraiser matched, add “DIY Match” in the memo of your online gift or check.