Resources for Patients Who Have Pain

Resources for Patients who have pain

Here are some resources and recommendations for ways of addressing pain. These come from pediatric rheumatologists, other medical providers, and researchers specializing in pain management.


Free unless otherwise stated; search your App Store.

  • WebMAP Mobile–education about pain for older kids and adolescents including ways to track and help pain. Copy this address into your browser:
  • MindShift—anxiety management tool using CBT
  • Breathe, Think, Do—problem solving strategies for children
  • MyCalmBeat—guided diaphragmatic breathing
  • Breate2Relax—breathing and muscle relaxation exercises
  • Small Talk Pain Scale
  • Pain Squad
  • Achy Penguin
  • My Pain Diary – $4.99 – chronic pain and symptom tracker



Our pediatric rheumatologists recommend avoiding pain clinics that only offer narcotics or opiates to treat pain. A pain clinic should focus on the person, not just the pain.

  • Find anxiety disorder specialists here: and
  • Read more about the variety of options available at WebMD.
  • Read more about research on comprehensive approaches to pain here.
  • Physical therapy is highly recommended, with techniques including strengthening and stretching. Other options include transcutaneous electrical nerve stimulation (TENS), ultrasound, massage, and myofascial release.
  • Talk to your physical therapist about orthotics if body positioning, mechanics or structural issues contribute to pain.
  • Aqua-therapy is great for kids who experience pain with land-based physical therapy.
  • Occupational therapy might include desensitization techniques and sensory integration techniques.
  • Mental health counseling includes cognitive behavioral and dialectical behavior therapy, with counselors specializing in kids with chronic illness and chronic pain.
  • Multidisciplinary pediatric chronic pain clinics include the following:
  • Pediatric Palliative Care Services. Do not let the word ‘palliative’ frighten you away from these services—it simply means ‘relieving pain without dealing with the cause of the condition.’ Your pediatric rheumatologist or primary care physician can help coordinate these approaches and help you manage your disease.

Non-Prescription Methods for Pain Management

  • Heating pads
  • Rice packs (put rice in an old sock and microwave it – not too hot!)
  • Cold therapy
  • Acupuncture
  • Dry needling
  • Massage
  • Menthol or other aromatherapy
  • Paraffin wax bath for hand pain
  • Buzzy Bee
  • ShotBlocker

Over the Counter Medications

Use per the manufacturer’s instructions.

  • Acetaminophen (Tylenol) up to every 4 hours (i.e. 6 times per day)
  • Non-steroidal anti-inflammatory drugs (NSAID)
    • Note: do not combine different NSAIDs
    • Note: it is safe to use both an NSAID and acetaminophen because they work differently— alternate the medications every three or more hours.
    • Ibuprofen (Motrin or Advil) up to every 6 hours (i.e. four times per day)
    • Naproxen sodium (Aleve)
    • Diclofenac (Voltaren) gel
  • Salonpas patches
  • Lidocaine patches

Traveling with JM

Planning a trip or vacation can be challenging, especially when you have a child with juvenile myositis. With spring break and summer break just around the corner, the pressure might be even greater. However, at Cure JM, we want to help ensure that you and your child can enjoy all the delights of a vacation with minimal stress.

A Grandparent Spotlight – Anita

Cure JM recently had the pleasure of interviewing a remarkable individual who hails from Canton, Ohio, and brings a wealth of experience and love to her family. With a vibrant history spanning over five decades of marriage, three daughters, and a rich tapestry of grandchildren and great-grandchildren, Anita Mottice’s journey is as inspiring as it is heartwarming. As a retired nurse and devoted wife, Anita shares her profound connection with her family, particularly her grandchild Sydney, who has been diagnosed with Juvenile Myositis (JM).

GCOM 2024 Round Up

Recently, Cure JM’s Jim Minow was able to attend the Global Conference for Myositis. This conference was not only informational, but was a most impressive day for Cure JM. The conference brings together leading myositis researchers from around the world to share results and collaborate on future projects leading to better care and improved treatments for our JM kids.

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