Family News

Alex Hackney’s Story

Despite battling juvenile dermatomyositis (JDM) as a child, Alex Hackney never envisioned becoming a marathon runner, let alone completing prestigious races like the Chicago and New York Marathons. With over 15 years of grappling with JDM, Alex recently completing her third marathon and found closure and perspective in Chicago.

Emotional and Mental Health Resources for Experienced Parents and Caregivers

Do you know the warning signs of depression and anxiety? Has your child had a mental/emotional health assessment? Here are some resources for you, your child, and other family members.

Understanding Second-Line Treatments and Side Effects

Second-line treatments refer to options beyond steroids and methotrexate. They are designed to manage JM while reducing reliance on those medications. We understand that adding new treatments to your child’s regimen can be intimidating. However, rest assured that your doctor has carefully considered the benefits and risks of each option to design the best treatment plan for your family.

Read the Newsletter

Alex Hackney’s Story

Emotional and Mental Health Resources for Experienced Parents and Caregivers

Understanding Second-Line Treatments and Side Effects

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