Family News

Family News

The Cure JM Foundation produces a monthly newsletter with the latest news and updates about juvenile myositis. Please click below to read past issues of the Family News.

Read the Newsletter

Family News: June 2025

Family News: May 2025

Family News: April 2025

Family News: March 2025

Family News: February 2025

Family News: January 2025

Family News: December 2024

Traveling with JM

Planning a trip or vacation can be challenging, especially when you have a child with juvenile myositis. With spring break and summer break just around the corner, the pressure might be even greater. However, at Cure JM, we want to help ensure that you and your child can enjoy all the delights of a vacation with minimal stress.

What is IVIG?

What Parents Should Know About IVIg (Intra-Venous ImmunoGlobulin)

The questions about what to do before and post-IVIg to prevent side effects come up often. We know that IVIg can be a very beneficial treatment for JDM, yet it is not without potential side effects. Please read further to minimize the event’s trauma and prevent side effects, e.g., nausea, severe headaches, etc.

Alex Hackney’s Story

Despite battling juvenile dermatomyositis (JDM) as a child, Alex Hackney never envisioned becoming a marathon runner, let alone completing prestigious races like the Chicago and New York Marathons. With over 15 years of grappling with JDM, Alex recently completing her third marathon and found closure and perspective in Chicago.

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Membership is free and we’ll connect you with a network of support, encouragement, and resources.

Cure JM supports families, patients, and the juvenile myositis research community.

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