Each year I create a short list of the top five personal New Year’s resolutions for my work at Cure JM. While we have many more important goals for the year, these five represent something of a personal wish list of major objectives-turned-resolutions for the New Year.
We don't always control the pace of science. But we do control the passion and energy that results in progress, step-by-step, toward better treatments and a Cure for JM. I look forward to sharing our progress with you as we move through the coming year.
Thank you, our friends and families, for making this progress possible.
James Minow
Cure JM Executive Director
COVID-19 VACCINE FAQs
We have received many questions from our families on whether their child with JM should receive one of the COVID-19 vaccines recently granted emergency authorization from the FDA. Cure JM Foundation and our Medical Advisory Board have been monitoring the safety data of the vaccines and reviewing expert information and guidance relevant to our families.
We have compiled a series of questions and answers from trusted sources to inform your choices about the COVID-19 vaccines. The following questions and answers are curated from trusted sources, including the Arthritis Foundation, the Centers for Disease Control, the European League Against Rheumatism, and the Lupus Foundation. This information is not a substitute for medical advice. Please consult your healthcare provider regarding individual medical decisions.
Please note that this information is based on what we know now, so please check-in daily with reputable sources such as the CDC, your state and local public health agencies, and your healthcare provider. We will update you as soon as more relevant information becomes available.
REGISTER FOR THE CURE JM TOWN HALL, “THE IMPACT OF SELF CARE”
In this interactive session, you will learn about the neuroscience of stress and how stressors impact one’s ability to cope with stress. You will engage in self-care practices that help build both resilience, self-awareness and improve our capacity to build relationships.
This session will be led by Gill McClean, Director of Professional Development at Pure Edge, Inc. She trains & hosts webinars across the country on self-care and integrating health and wellness best practices. She regularly presents at conferences to share best practices in managing stress.
Prior to moving to Houston, Gill lived and worked in the United Kingdom, Colombia, United Arab Emirates, Oman and The Netherlands in a variety of roles to learn the culture and make a difference. She managed the allocation of low-cost government housing, working with the homeless, as well as, founded North East Scotland’s first dedicated yoga studio. During her overseas postings, Gill became a member of numerous Women’s Organizations supporting local charities. Her charitable efforts include fundraising for orphans in developing countries.
She holds a Higher National Certificate in Local Government Administration from Langside College, and also attended Shawlands Academy, in Glasgow, Scotland.
Presenting Sponsor of the Cure JM Family News
Clinical Specialty Infusions Pharmacy
Do you have a story you would like to share? Contact enews@curejm.org
