Family News

Supporting Restful Nights: Practical Tips for Parents of Children with JM

One common issue that we hear about from our families is that after diagnosis their child has trouble falling asleep or staying asleep. This can be due to a variety of factors including discomfort, pain, worry, or fear. Corticosteroids and other JM treatments can also interfere with sleep.

Understanding Second-Line Treatments and Side Effects

Second-line treatments refer to options beyond steroids and methotrexate. They are designed to manage JM while reducing reliance on those medications. We understand that adding new treatments to your child’s regimen can be intimidating. However, rest assured that your doctor has carefully considered the benefits and risks of each option to design the best treatment plan for your family.

Town Hall October 2024, Calcinosis, Christian Lood

What We Know About Calcinosis & How to Treat It

At the October 25th Town Hall, Dr. Christian Lood, professor and researcher at the University of Washington and Seattle Children’s Hospital, presented on the topic

Read the Newsletter

Supporting Restful Nights: Practical Tips for Parents of Children with JM

Understanding Second-Line Treatments and Side Effects

What We Know About Calcinosis & How to Treat It

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