A small band of founders changed the destiny of JM children around the world during a time when JMers faced long-term pain and suffering and far higher rates of mortality than we see today. Cure JM blossomed into a community of invested families and friends that continues to create better treatments and better care for JM children.
We need this community now more than ever.
As Cure JM moves into 2021, we need to raise just over $650,000 in the Holiday Challenge as a start to fund our programs for the year — promising drug trials, our national and international research programs, drug discovery and genetics programs, clinical Centers of Excellence to provide the highest quality of care for our JM warriors and peer support and medical education for our families.
We have several promising drug candidates for trials in JM in 2021. I could not be more excited about this, and some of these drug candidates have emerged as a result of our discovery work in programs that Cure JM has funded at Children's Hospital of Philadelphia and the National Center for Advancing Translational Sciences at the NIH.
The Cure JM Holiday Challenge is already off to a fantastic start. Thanks to the generosity of the Coffey family, we now have a $125,000 Challenge Grant that will match, dollar for dollar, any gift you can give today. That means your $100 gift becomes $200; your $250 gift becomes $500 and so forth.
Families are already stepping forward to support the Holiday Challenge, as we lead up to our big day, Giving Tuesday, December 1. Won’t you join them?
“Find a JM Doctor” is produced by Cure JM Foundation for your reference of doctors know known to be experienced in JM care. It is intended to provide you with quick access to information on pediatric rheumatologists. You can review the list here.
UPDATE ON A PROMISING NEW DRUG TO TREAT JM: VAMOROLONE
Presented by Eric Hoffman, PhD, Vice President of Research, ReveraGen.
NUTRITION AND EXERCISE TOWN HALL RECORDING
What are the best foods for my child with JM? How do we handle the steroid cravings? How do we eat healthy with all the side effects of the medications? What about a gluten-free diet? Anti-inflammatory diet? Are competitive sports safe for my child? Are there exercises my child can do to improve their outcome? In this interactive session, we will talk about how to apply the nutrition and exercise recommendations sometimes provided by healthcare providers and make them work for your family in the ‘real world’.
Presenting Sponsor of the Cure JM Family News
Clinical Specialty Infusions Pharmacy
Do you have a story you would like to share? Contact enews@curejm.org
