National Leadership Council

The Cure JM National Leadership Council is the organization that leads the charge to raise funds and advance Cure JM’s mission in communities across the country.

Watch this video on the National Leadership Council’s accomplishments over the past year and also across our 20-year history.
National Leadership Council at the 2023 Cure JM Conference

The National Leadership Council engaged in a meeting of the minds to plan for 2024

The council is made up of volunteers from around the world who are getting involved to make a future free from juvenile myositis.  Volunteers include families, friends, and members of the community.

The National Leadership Council is made up of committees, each with a different mission.  If you are interested in joining or starting a committee, please reach out to shannon.malloy@curejm.org.

The Officers and Steering Committee plans the work of the National Leadership Committee.

The full National Leadership Council meets quarterly, and committees may choose to meet more often. For more information, please contact Shannon Malloy at shannon.malloy@curejm.org.

 

 

 

 

 

 

 

 

 

National Leadership Council officers

Debbie DaumDebbie Daum
Officer, Co-Chair

John Caldwell
Officer, Co-Chair

Bobbie Bernhardt
Officer, Vice Chair

Tiffany CaldwellTiffany Caldwell
Officer

Randy PuttRandy Putt
Officer, Grandparent Chair

Dave MaherDave Maher
Chair Emeritus

National Leadership Council Steering Committee

  • Trisha Buescher
  • Alyssa Carpenter
  • Jessica Doherty
  • Anh Hwang
  • Leah Kania
  • Lynn Neuenswander
  • Annie Nielson
  • Mark Nielson
  • Luke Ryan
  • Mark Sangid
  • Norah Sangid
  • Todd Scheidt
  • Damon Smedley
  • Shannon Taylor

Holiday Challenge Committee of
the National Leadership Council

Committee Co-Chairs

Leah Kania
Debbie Daum
Bobbie Bernhardt

Committee Members

  • Alyssa Carpenter
  • Matt Bernhardt
  • Carrie Bernhardt
  • Amy Blitz
  • Jeff Blitz
  • Cristal Brinker
  • Glen & Leslie Budnick /Westrom
  • Maggie Choy
  • Suzy Clement / Gonzalez
  • Eleanor Clements
  • Marge Coffey
  • Christy Coss, M.D.
  • Elinor Dahil
  • Emily Darnell
  • John Daum
  • Warren Durbin
  • Rebecca Gengler
  • Zahra and Javod Gol
  • Julie Golob
  • Kim & Adam Gorman
  • Joanne Hall
  • Christina Hunstad
  • P.J. Kania
  • Bitsy Kasselberg
  • Michael Kenawell
  • Talita Kiper
  • Jessica Kovacs
  • Austin Krainz
  • Lindsay Llauget
  • Kathy Maher
  • Colleen Marchetta
  • Kadie Martin
  • Kelly Mitchell
  • Veronica Montero
  • Kathleen Newman
  • Rachel Newman, MD
  • Dee Dee & Ron Perel
  • Anna Ramsey
  • Joel & Laurel Reed
  • Ashley Renfrow
  • Anahi Renteria
  • Erica & Steve Schmittle
  • Carol & Rob Schwartz/Ramsey
  • Kristine Smith
  • David & Allison Taylor
  • Kristen Thurow
  • Bryan & Laura Waisnor
  • Ashley & Matt Whitt

Southern Walk Committee

  • Dr. Wang, PhD – Austin Walk
  • Diana & Ryan Reed – Austin Walk
  • Jenny Simmons – Nashville Walk
  • James Tealy – Nashville Walk
  • Chelsea Benitez – Dallas Walk
  • Abbey Hutchins – Houston Walk
  • Nick Echols – Raleigh/Durham Walk
  • Sara Echols – Raleigh/Durham Walk
  • Jessica Doherty – Tampa Walk

Midwestern Walk Committee

  • Suzanne Field – Chicago Walk
  • Nicole Meyer – Chicago Walk
  • Tommy Schreiner – Chicago Walk
  • Mariana Schreiner – Chicago Walk
  • Mel Belpedio – Chicago Walk
  • Dan Grahn – Cincinnati Walk
  • Sheri Grahn – Cincinnati Walk
  • Sammie Fish – Cincinnati Walk
  • Kelly Fish – Cincinnati Walk
  • Justin Cook – Kansas City Walk
  • Tiffany Caldwell – Kansas City Walk
  • Erin Hicks – Kansas City Walk
  • Rachel Sestak – Michigan Walk
  • Kelly Culver – Pittsburgh Walk
  • Melissa Eisenreich – Pittsburgh Walk
  • Mary Ann Eisenreich – Pittsburgh Walk
  • Jamie Gutermuth – Pittsburgh Walk
  • Jason Stafford – Pittsburgh Walk
  • Mary Beth Stafford – Pittsburgh Walk

Northeastern Walk Committee

  • Luke Ryan – Boston Walk
  • Liz Ryan – Boston Walk
  • Carey Brudis – D.C. Walk
  • Naomi Gonzalez – D.C. Walk
  • Shannon Taylor – D.C. Walk
  • Kristin Celano – D.C. Walk
  • Kevin Coffey – New York Walk
  • Doreen Coffey – New York Walk
  • Lisa Reilly – New York Walk
  • Nikki Savio – New York Walk

Western Walk Committee

  • Jenn Alspektor – Northern California Walk
  • Sue Carpenter – Northern California Walk
  • Laila Metni – Northern California Walk
  • Jason Phelps – Seattle Walk
  • Veronica Douglas – Seattle Walk
  • Kelsey Gianou – Seattle Walk
  • Julie Shevlin – Seattle Walk
  • Nicole Woodman – Seattle Walk
  • Erin & Ben Sheedy –Seattle Walk
  • Trisha Buescher – Reno Walk
  • Camille Deal – Reno Walk
  • Suzie Wallace – Reno Walk
  • Genevieve DeBernardis – Reno Walk
  • Lynn Neuenswander – Southern California Walk
  • Connie Perea – Southern California Walk
  • Maggie Choy – Southern California Walk
  • Kellin Smith – Southern California Walk

Walk From Home Committee

Alyssa Carpenter
Sasha Kloos

Auction Committee

Committee Chair

Denise Koch

Family of Families Committee

Committee Chair

Tiffany Caldwell  

DIY Fundraising Committee

Committee Chair

Luke Ryan

Dads connect

Committee Co-Chairs

Luke Ryan
John Caldwell

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