Volunteer Spotlight- Kristine Alderfer

As a member of the Cure JM community, you have likely heard the name Kristine Alderfer, a devoted parent of a teen with JM who has become a leader, serving as the President of our Board of Directors.

Kristine has been involved in Cure JM through volunteer roles for many years, and her involvement has become a family affair, as her daughter Katherine is a patient advocate for others with the disease. For over a decade, the Alderfer family has volunteered their time and talents to deliver a lasting impact on our mission. The family has hosted countless JM research fundraisers, including Christmas Shop for a Cure, Evening Under The Stars, and Cure JM marathons.

Most recently, Kristine has taken her leadership to new heights, serving as the Volunteer Chair of Cure JM’s National Family Conference.

We would like to thank the Alderfer family for carrying out the work that supports our community. Click below to hear about Kristine and Katherine’s rare disease journey.

Read Kristine’s Story

Photo of Mark Zuckerberg and Priscilla

Cure JM Research Consortium Receives Prestigious Chan Zuckerberg Grant

The Chan Zuckerberg Initiative has awarded Cure JM and a consortium of Cure JM-funded researchers a coveted $2 million rare disease research grant to identify new biomarkers in JM and improve precise, personalized care through the identification of cell-to-cell interactions that drive inflammation in juvenile myositis.

Exercise and Juvenile Myositis

In this presentation, Dr. Laura Tasan explains the importance of exercise for JM patients. Since JM children suffer from endurance and fatigue issues, exercise for

Love Letter to a Grandparent, series 2

Love Letter to a Grandparent

Dear Grandma and Grandpa, I miss you and really wish we lived closer to each other. I love when you send my mommy pictures of

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