JDM 101: Lo Que Los Padres Necesitan Saber

Únase a nosotros para escuchar al Dr. Torres. JDM 101: Lo Que Los Padres Necesitan Saber – Prepárate con el conocimiento esencial para enfrentar la dermatomiositis juvenil (JDM). Esta guía ofrece a los padres la información clave necesaria para comprender, manejar y abogar por la salud de su hijo.

In English: Join us in hearing from Dr. Torres. JDM 101: What Parents Need to Know – Equip yourself with the essential knowledge to navigate juvenile dermatomyositis (JDM). This guide offers parents the crucial information needed to understand, manage, and advocate for their child’s health.

Balancing Work and Caregiving: Strategies for Working Parents of Children with Juvenile Myositis

Balancing Work and Caregiving: Strategies for Working Parents of Children with Juvenile Myositis

Balancing the demands of a career with the responsibilities of caregiving is a challenging task for any parent. For those with a child diagnosed with juvenile myositis (JM), a rare autoimmune disease affecting children, the challenge is heightened. Juggling work commitments while providing the necessary care and support for a child with JM can be taxing. In this article, we hope to provide you with a few effective strategies and insights to help working parents navigate this delicate balance.

IVIG: What Families Need to Know

Learn about IVIG (immunoglobulin therapy administered by vein). This session features Dr. Fatma Dedeoglu of Boston Children’s Hospital, Huub Kreuwel PhD, of Octapharma Plasma, and patient advocate, Michelle Vogel, of CSI Pharmacy.

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Membership is free and we’ll connect you with a network of support, encouragement, and resources.

Cure JM supports families, patients, and the juvenile myositis research community.

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