IVIG: What Families Need to Know

In this session, learn about IVIG (immunoglobulin therapy administered by vein):

What is IVIG?
When do doctors consider IVIG as a treatment?
What can you and your child expect during an infusion?
What are the tips for the day of the IVIG treatment?
What do you need to know about insurance?

This session features:

Dr. Fatma Dedeoglu of Boston Children’s Hospital
Huub Kreuwel Ph.D., of Octapharma Plasma
Patient advocate Michelle Vogel, of CSI Pharmacy

Optimizing Myositis Care: The Role of Biologics

Biologics are a therapies that derived from living cells or through biological processes. They are a promising new class of drugs used to treat myositis.

Caring for Smiles with JM: Navigating Dental Health Challenges with a Suppressed Immune System

As Cure JM parents, we know that the disease and medications often can cause a cascade of other issues. One issue many of our families

Alexandra’s Story

Alexandra grew up in Philadelphia. At eight years old, she was diagnosed with juvenile dermatomyositis. Her first symptom was pain in her cuticles whenever she

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IVIG: What Families Need to Know

Optimizing Myositis Care: The Role of Biologics

Caring for Smiles with JM: Navigating Dental Health Challenges with a Suppressed Immune System

Alexandra’s Story

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