How to Talk to Your Child About Mental and Emotional Health

We know that living with juvenile dermatomyositis affects the physical as well as emotional health of our children. Sometimes it is hard to distinguish “normal” behavior and feelings from more difficult ones of depression and anxiety.

This presentation aims to increase understanding and awareness of emotional health and parents’ important role in supporting and encouraging a child’s mental health habits.

Presenters address the rationale and benefits of promoting emotional health in children, impart knowledge of emotional development milestones throughout childhood, and provide practical skills and language to discuss emotional and mental health with children.

Understanding the phases of emotional development in childhood helps parents feel more equipped to manage and promote emotional health in children.

Featuring:

  • Stacey Haynes, PhD Psychologist, Seattle Children’s Hospital, Cure JM Center of Excellence
  • Megan Curran, MD, Associate Professor of Pediatrics University of Colorado Denver, Attending Physician, Pediatric Rheumatology, Colorado Children’s Hospital
  • Anna Ramsey, BA, working on MSW, Young adult living with JM since adolescence
  • Annie Mitchell, BA in Special Education, Cure JM Board of Directors and Mom to a JM child

The Potential of JAKs in Fighting JM

In our June 2024 “Ask the Doc” Town Hall, Dr. Julie Paik joins in a Q&A session to shed light on what JAK inhibitors are, how they work in JM, when parents might consider discussing JAKs as a treatment option, and the pros and cons of their use.

The Potential of CAR-T Therapy in Myositis.

The Very Real Potential of CAR-T Therapy in Myositis

We expected to hear promising news about the potential for CAR-T therapy to treat myositis at the Global Conference on Myositis (GCOM).

What we heard was more than promising—it was astounding.

What if I told you that there was a therapy that would “reset” the immune system—virtually eliminating the autoimmune response in myositis that causes inflammation, pain, muscle weakness, and other JM conditions of which we are all too familiar.

Helping Parents & Kids When They Express High Emotional Distress

This expert-led presentation is for parents about how to help their kids and themselves when their kids express high levels of emotional distress. Our presenters will talk about ways parents can calm themselves, share tips for talking to kids with age-appropriate information, and know when to find help from a professional. There will be a Q&A session immediately following the presentation.

Join Cure JM

Membership is free and we’ll connect you with a network of support, encouragement, and resources.

Cure JM supports families, patients, and the juvenile myositis research community.

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