Cure JM treasures the unique role that grandparents play within their families and within Cure JM. The Cure JM Grandparent Council is the platform for engagement for all grandparents of patients living with Juvenile Myositis.
Grandparents have always had a special role at Cure JM. In October 2003, Cure JM was founded by Harriet Bollar, grandmother of a child with JM, and Tom and Shari Hume and Lisa Felix, parents of children with Juvenile Myositis.
When does the Grandparent Council meet?
The Grandparent Council meets monthly by phone. The monthly phone meetings are a chance for Grandparents to connect with each other and plan the work of the Grandparent Council.
The Grandparent Council meeting will also have occasional guest speakers, such as researchers and physicians, who will give updates on the latest in Juvenile Myositis research and care. These sessions give Grandparents a chance to learn and ask questions of the researchers and physicians.
We also meet in person every other year at the Cure JM Family Conference.