Family News
The Cure JM Foundation produces a monthly newsletter with the latest news and updates about Juvenile Myositis. Please click to read past issues of the Family News.
Emotional and Mental Health: General Resources
In order to understand how our families cope with mental health, we collaborated with Andrea Knight MD MSCE, an expert in the autoimmune and mental health fields.
Research Volunteers and Assistance Needed
Help researchers find the cause and a cure for juvenile myositis by volunteering for these important studies.
Tips for Teens
Here are some tips from Anna, Morgan and Samantha to help you navigate medical and social issues like medications, socializing, school, and diet.
Signs of Depression and Anxiety in Children and Teens
Kids with JDM experience depression and anxiety at 2-3 times a higher rate than their peers. We hope that by outlining the common signs and symptoms of depression and anxiety, you are better able to support your children.
Emotional and Mental Health Resources for Parents and Caregivers of Newly Diagnosed Children
As the parent of a newly diagnosed child, you might feel overwhelmed and worried. These are normal reactions. You might want, and need support, from others who have been, or still are, on this same journey.
Resources for Patients Who Have Pain
Here are some resources and recommendations for ways of addressing pain. These come from pediatric rheumatologists and other medical providers/researchers.
Products and Resources To Protect Your Child From the Sun
In collaboration with leading experts, we have curated a list of products that can help protect your child from the UV rays that come from the sun and even harmful artificial light.
Social Security and Supplemental Security Income Resources
The Social Security and Supplemental Security Income disability programs are the two largest Federal programs providing assistance to people with disabilities.
Government Resources
Helpful links for government resources such as the Social Security Administration, Social Security Disability Insurance, Supplemental Security Income, and more.
Health Insurance Tips and Links
Tips and links for dealing with insurance claims, denials and appeals, making phone calls, changes in health care law, help with medical bills, and more.
Emotional and Mental Health Resources for Experienced Parents and Caregivers
Do you know the warning signs of depression and anxiety? Has your child had a mental/emotional health assessment? Here are some resources for you, your child, and other family members.
Support Cure JM Foundation
Cure JM Foundation is a 501(c)(3) nonprofit, volunteer-managed organization dedicated to finding a cure for juvenile myositis (JM).
Parker’s Journey and the Start of Cure JM
At age 4 Parker was diagnosed with juvenile dermatomyositis. Only 2 in a million children are affected. We started Cure JM to find a cure and help kids like Parker.
Nine Ways Grandparents Can Support Their Family After Diagnosis
Here are some ideas shared with us by JM grandparents on how how to best support their grandchild, siblings, and family.
Published Research Studies and Abstracts Supported by Cure JM
There are a number of published studies about juvenile myositis. Browse this list of over 100 published research studies and abstracts.
2021 Impact Report and 2022 Goals
Featuring Jim Minow, Executive Director of Cure JM, Dr. Andrew Heaton, Ph.D, Chief Scientific Officer, and Shannon Malloy, Director of Development and Family Engagement.