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“Ask the Doc” – Sun Protection Tricks & Tips for Summer 2023

With summer underway, we are honored to share our “Ask the Doc” Town Hall on Sun Protection Tips and Tricks for Summer. In this session, Shelia Angeles-Han, MD, MSc, and Kalyani Marathe, MD, MPH of Cincinnati Children’s Hospital, share the importance of sun protection for JM patients.

Sun Protection Tips & Tricks: What Parents, Grandparents, and Patients Need to Know

What role does sun protection play in managing JM? Will my child be able to enjoy outdoor activities this summer with active disease? What sun protection items offer the best protection?

Click above to watch the full session and Q&A.

Photo of Mark Zuckerberg and Priscilla

Cure JM Research Consortium Receives Prestigious Chan Zuckerberg Grant

The Chan Zuckerberg Initiative has awarded Cure JM and a consortium of Cure JM-funded researchers a coveted $2 million rare disease research grant to identify new biomarkers in JM and improve precise, personalized care through the identification of cell-to-cell interactions that drive inflammation in juvenile myositis.

IVIG: What Families Need to Know

Learn about IVIG (immunoglobulin therapy administered by vein). This session features Dr. Fatma Dedeoglu of Boston Children’s Hospital, Huub Kreuwel PhD, of Octapharma Plasma, and patient advocate, Michelle Vogel, of CSI Pharmacy.

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