Our February Town Hall featured a conversation designed for parents, grandparents, and caregivers navigating life with Juvenile Myositis. A small panel of young adults in their 20s who grew up with JM shared honest reflections on what they wish parents understood, what helped them most, and what—despite good intentions—made things harder along the way. Rather than offering a roadmap or one-size-fits-all answers, this discussion invited families to listen, reflect, and better understand the lived experience of JM through the voices of those who have walked it into adulthood.
Advocating for Your Child: Navigating School and Community
Practical tips on how to navigate your child’s school system. Presented by Michelle Best (special education and mental health advocate) and Sue Carpenter (special education resource specialist teacher).
