Tips for Detecting and Navigating JDM Flares

In February, Dr. Turnier and Dr. Sabbagh presented an informational Town Hall for JM families. Catch It Early, Control It Faster: Discover expert tips for spotting and navigating Juvenile Dermatomyositis (JDM) flares for better control and brighter outcomes

Natalia in her Team Natalia Shirt

Natalia’s Story

Natalia is seven years old, and in January 2021, she began experiencing pain. Everyday tasks were difficult. Natalia’s parents, Lindsay and Matt, reached out to

Why I Walk- Ellen Stream

Ellen Stream’s Story: Walking and Quilting for JM Families

Ellen Stream’s love for her granddaughter, Brooklyn, fuels her commitment to the juvenile myositis community. When Brooklyn was diagnosed with juvenile dermatomyositis (JDM) at two and a half, Ellen faced a wave of fear. Would Brooklyn run and play like other kids? Could she enjoy school, sports, or friendships without the weight of infusions and flare-ups? Those early days brought uncertainty, but Ellen and Brooklyn’s other grandmother built a support system across miles, showing distance doesn’t dim love.

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