This informational presentation was created for families with children newly diagnosed with juvenile dermatomyositis (JDM) or juvenile polymyositis (JPM), the most common forms of juvenile myositis (JM).
It provides an overview of the disease and what to expect through doctor, patient and family interviews.
The questions about what to do before and post-IVIg to prevent side effects come up often. We know that IVIg can be a very beneficial treatment for JDM, yet it is not without potential side effects. Please read further to minimize the event’s trauma and prevent side effects, e.g., nausea, severe headaches, etc.
The Cure JM Foundation produces a quarterly newsletter with the latest news, educational opportunities, and research updates about Juvenile Myositis.
Juvenile Dermatomyositis: Advances in Basic Research, Translational Studies and Clinical care. Hosted by Duke University and Cure JM Foundation. March 12th, 2022.
Membership is free and we’ll connect you with a network of support, encouragement, and resources.
To have your fundraiser matched, add “DIY Match” in the memo of your online gift or check.
