2018 Cure JM Foundation National Conference

Livestream Videos of Educational Sessions

Once again, Cure JM is pleased to announce that portions of the Cure JM National Family Conference will be livestreamed on our website.

The conference is being livestreamed thanks to the extraordinary generosity of Cure JM grandparents Bruce and Judy Leetz. Thank you, Leetz family! This will allow families and patients from around the world to participate in the conference from home.

Prior to the conference, we will provide test screens for the two live-stream channels. For help with the livestreaming, please call 866-398-2823 extension 8012.

A schedule of the Livestream programming is below the channels.

Channel A

Channel B

Schedule (subject to change)

Friday, June 29th, from 3:00pm - 6:00pm Eastern Time (9:00pm to Midnight GMT)

  • 3:00pm - 4:30pm Eastern:
    • “Patient Advocacy - Navigating School and Community” presented by Juliet Hiznay, JD
  • 5:00pm - 6:00pm Eastern:
    • “Coping for Caregivers” presented by Carol Schwartz, LCSW

Saturday, June 30th from 8:30am - 9:00pm Eastern Time (2:30pm to 3:00am GMT)

  • 8:30am - 12:00pm Eastern:
    • “General Session” featuring research updates and Q&A with prominent JM experts, Lisa G. Rider, MD; Lauren M. Pachman, MD; Ann M. Reed, MD; Susan Kim, MD, MMSc; Charlly Kao, PhD; Kanneboyina Nagaraju, DVM, MVSc, PhD, and Cure JM Executive Director Jim Minow
  • 1:30pm-3:00pm Eastern:
    • “Nutrition & Exercise Panel” presented by Josh Woolstenhulme, PhD, DPT; Julie Shevlin, RDn
    • “Treatments & Side Effects Panel” presented by Hanna Kim, MD; Megan Curran, MD
  • 3:30pm - 5:00pm Eastern:
    • “Drug Discovery & Emerging Treatments Panel” presented by Lisa G. Rider, MD; Jim Minow; Kanneboyina Nagaraju, DVM, MVSc, PhD; Patricia K. Dranchak, PhD; Rohit Aggarwal, MD, MSc; Marge Coffey
    • “Understanding Lab Tests and Other Signs of Flare” presented by Bita Arabshahi, MD; Laura Tasan, MD
  • 6:00pm Eastern:
    • Recognition Dinner and Award Ceremony to celebrate the collective accomplishments of the Cure JM Community