Cure JM Foundation Newsletter
Happy Mother's Day and Thank You to All Cure JM Caregivers
Written by Jordan, age 25
I just wanted to let you know that we as kids with Juvenile Myositis are so blessed to have you as parents, grandparents and caregivers.
We could not make it through without such strong, supportive people in our lives. I see the love and strength you give day in and day out taking care of your families. You are doing an awesome job and they will appreciate it as they get older.
They will understand why you made them take those medications or why you wouldn't let them go in the sun without sunscreen. Just know...YOU are amazing and I want to thank you on behalf of the little ones that don't quite understand it yet. Thank you!
Written by Jordan, pictured here with her parents. Jordan was diagnosed with Juvenile Myositis at age 10. She now lives in Texas where she is actively involved with Cure JM and is busy enjoying life as a newlywed.
Thank You, Mom
We knew Cure JM had some amazing moms, but what do the kids have to say? Cure JM kids share what their moms mean to them:
My mom knows how to make me happy on the hardest days and times. But the most important thing about mom is that she is the best mom in the world. - Maya, age 10
I love my mommy because she makes sure I'm healthy, takes care of me, goes to the doctors with me, comforts me and makes me feel great. - Maddie, age 6
I'm pretty sure I have the best mom ever. Somehow she managed to hold things together when the world seemed to be falling apart. More than 20 years later, she's still willing to show her support as she ties up her sneakers and races with me. I'd say that makes her an awesome mom. - Chyllia, adult
Mommies are special because they love us so, so much! - Jack, age 4
My mom holds my hand when I am scared and always makes me feel better. I love my mom because I know she loves me no matter what. She is my biggest fan. - Jonathan, age 11
My mom means the world to me. She is my best friend and the best mother I could ever ask for. She has literally been there for me through everything. And I mean everything: fighting this disease, heartbreak, and even picking out prom dresses. I love my mom so much there are not enough words to describe it. Kelsi, Age 19
Your Support Makes Four New Juvenile Myositis Research Grants Possible
Since 2003, Cure JM has invested more than $8 million in research and educational programs, having a great impact on the lives of children and adults with Juvenile Myositis (JM).
And now, thanks to your hard work, generosity and support, Cure JM will be funding up to four new studies to advance Juvenile Myositis research.
Cure JM has announced that Requests for Proposals for Juvenile Myositis research will be accepted through July 1st with grants awarded to start work on September 1st.
Cure JM is collaborating with a CARRA* scientific peer-review committee to evaluate the most promising and scientifically sound projects. Through careful strategic planning and this peer-review process, we will identify and fund the best Juvenile Myositis research projects available with the ultimate goal of finding better treatments and a cure.
Thank you for making these new research grants possible.
*CARRA is the Childhood Arthritis and Rheumatology Research Alliance and consists of more than 400 pediatric rheumatology researchers and research coordinators working to find treatments for rheumatic diseases.
REGISTRATION NOW OPEN:
Cure JM's National Conference
San Jose, CA
October 3rd-5th
This October, come together with the Cure JM community for the 8th annual Cure JM National Educational Conference and Fundraising Event.
This year's event has even more of what you asked for:
- A welcome reception and casual meet-and-greet
- Intimate breakout sessions about coping with real-life issues facing JM families
- An educational forum with top JM experts
- Casual social time
- A recognition dinner
- The San Jose Rock 'n' Roll Half Marathon and 5 mile run
- And much, much more!
Bring the whole family! This year's conference features breakout sessions for dads, grandparents, young adults, teens/tweens, children and more. View the complete schedule here.
You can help make this weekend in San Jose our biggest, most successful event ever and bring us miles closer to a cure.
Conference details and online registration
Questions? Problems ? Want to help from home?
contact Shannon at shannon.malloy@curejm.org
Welcome Amy Gleason to Cure JM Board of Directors
Cure JM is pleased to welcome Amy Gleason to the Board of Directors.
Amy is a registered nurse with start-up business experience and extensive medical contacts. This uniquely suits her for her new role as Cure JM Vice President of Research.
“Amy’s medical background and her passion for Cure JM are a true asset,” says Cure JM Chairman Rhonda McKeever. “We are thrilled to have her step up to a bigger role within Cure JM and look forward to all that she brings to the table."
Amy has hit the ground running and is already making a big impact. Amy is working on several projects, including the 5th annual Cure JM National Medical Conference scheduled for October.
“Our JM kids rely on Cure JM to fund research that can lead to new treatments and one day to a cure,” says Amy. “We have some research projects underway and are excited about new projects on the horizon."
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