Helpful Information for the Newly Diagnosed
You or a family member has You or a family member has just been diagnosed with Juvenile Dermatomyositis (JDM) or Juvenile Polymyositis (JPM), and you feel as if the world has shifted under your feet. You’re not alone. The founders and volunteers here at Cure JM have gone through the same shock, uncertainty and fear that you no doubt are experiencing right now.
In speaking with JM families, we’ve identified seven "best practices" that are absolutely crucial when you, your child and family are battling Juvenile Myositis.
Manage Your Medical Team
Keep a Journal
Learn About Technology to Help Manage Your Child’s Care
Be an Advocate
Remember Sun Protection
Once you’ve read through this page, we also suggest that you check out the Top Ten Tips for Families Living with JM and our Video for Newly Diagnosed Patients. We would also like to encourage you to complete our Patient Registration. Once you’ve signed up, you’ll receive regular Cure JM Foundation newsletters, a copy of the Cure JM Welcome Kit, and full access to the Cure JM Family Support Network.
Remember, you’re not alone in this – we’re here to help.
*Cure JM Foundation does not endorse the individuals described therein, but rather provides this as an informational resource. In no event shall Cure JM Foundation be liable for any decision made or action taken in reliance on the information contained therein.