Social Security and Supplemental Security Income Resources

As a parent of a JM child, you may be entitled to assistance to help cover your child’s medical bills.The Social Security and Supplemental Security Income disability programs are the two largest Federal programs assisting people with disabilities. While these two programs are different in many ways, both are administered by the Social Security Administration and only individuals who have a disability and meet medical criteria may qualify for benefits under either program.

Social Security Disability Insurance (SSD)

Social Security Disability Insurance (SSD) benefits you and certain family members provided you are “insured.” In this case, being “insured” means that you have worked long enough and in occupations where you paid Social Security taxes.

Supplemental Security Income

Supplemental Security Income (SSI) pays benefits based on financial need. The Social Security website has a wealth of information regarding these programs.

When you apply for either program, medical and other information from you is collected and a decision is made about whether or not you or your family member meet Social Security’s definition of disability.  

The Benefits Eligibility Screening Tool can be used to help determine which programs may be able to pay you or your family member benefits.

For more information, please visit www.ssa.gov/disability/.

Balancing Work and Caregiving: Strategies for Working Parents of Children with Juvenile Myositis

Balancing the demands of a career with the responsibilities of caregiving is a challenging task for any parent. For those with a child diagnosed with juvenile myositis (JM), a rare autoimmune disease affecting children, the challenge is heightened. Juggling work commitments while providing the necessary care and support for a child with JM can be taxing. In this article, we hope to provide you with a few effective strategies and insights to help working parents navigate this delicate balance.

What is Juvenile Myositis?

Juvenile myositis, including juvenile dermatomyositis and juvenile polymyositis, is a group of rare and life-threatening autoimmune diseases, in which the body’s immune system attacks its own cells and tissues.

Traveling with JM

Planning a trip or vacation can be challenging, especially when you have a child with juvenile myositis. With spring break and summer break just around the corner, the pressure might be even greater. However, at Cure JM, we want to help ensure that you and your child can enjoy all the delights of a vacation with minimal stress.

Join Cure JM

Membership is free and we’ll connect you with a network of support, encouragement, and resources.

Cure JM supports families, patients, and the juvenile myositis research community.

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