Welcome to the 14th Annual Cure JM National Family Conference and Walk Strong to Cure JM®, Washington, DC
Thursday, June 29–Sunday, July 2, 2023 • Washington, DC Conference activities begin at 9:00 a.m. on Friday, June 30, and run through 12:00 p.m. on Sunday, July 2, 2023. All conference activities, including Sunday morning’s walk, will be held at the Gaithersburg Marriott Washingtonian Center at 9751 Washingtonian Boulevard, Gaithersburg, MD 20878. Families who book […]
Connect locally! Join one of our Cure JM Chapter Facebook Groups and meet other Cure JM Families at an upcoming event in your area. Connecting with families can be a great source of knowledge and support. To connect with other families in your region, find your area below or contact Betsy Leon at email@example.com. All […]
Helpful tips from other JM families on topics like reducing anxiety during treatments, shots and blood draws, dentist visits, sun shades, journaling, and more!
Joanne’s grandson was two and a half years old when he was diagnosed with juvenile dermatomyositis. His parents had just moved their family to a new city, so his rash and sluggish symptoms were confusing to pinpoint amidst all the life changes. He was taken to the pediatrician but was told, “nothing seemed serious.” Joanne […]
It was the middle of 2020 that our four-year-old granddaughter, Brooklynn, began developing outbreaks of what appeared to be butterfly-shaped rashes over her cheeks and nose and what would later be determined as gottron’s papules on her knuckles and hands. Her pediatrician ordered blood work and determined “all was well”, nothing to be concerned about. […]
Meeting notes are posted in the Grandparent Council Bookshelf. The December Grandparents Council (GPC) meeting was held on December 15, 2022. These meeting notes, along with previous meeting notes, are posted in the Grandparent Council Bookshelf on google docs: Recent GPC meeting notes. Introductions Thank you all for joining our meeting as we gear up for […]
Over ten years ago—in the spring of 2012—Brynn’s parents, Matt and Carrie, noticed a change in their daughter. Brynn had seemed like her normal four-year-old self while with her grandparents for Easter. But by May, something was different. “Our daughter, Carrie, and her husband Matt noticed that Brynn was not her active self,” says Randy, […]
The Grandparent Council meets on the 4th Thursday of every month. Here is the August Grandparent Council Meeting recording for your review.
Here are some ideas shared with us by JM grandparents on how how to best support their grandchild, siblings, and family.
My grandson, Connor, was diagnosed at a very young age. Since he was two years old, he has struggled with rigorous and invasive treatments. From then on, we knew he needed to have all his family’s love and support, now more than ever. Life hasn’t been easy for him, and it breaks my heart to […]
Meeting notes are posted in the Grandparent Council Bookshelf The November Grandparents Council (GPC) meeting was held on November 17, 2022. These meeting notes, along with previous meeting notes, are posted in the Grandparent Council Bookshelf on google docs: Recent GPC meeting notes. Thank you for joining us as we gear up for holiday celebrations with […]
We are asking all Cure JM Grandparents to please join us as Grandparent Ambassadors for Giving Tuesday. Hear why Giving Tuesday matters and sign up to help at www.curejm.org/hopehero. Sign up or reply to this message to learn how you can help from home in your free time. Helping takes as little as 10 minutes! If […]