Information for the Newly Diagnosed

This video contains important information for the newly diagnosed family.

The two featured physicians care for juvenile myositis (JM) patients and explain the following topics:

  • JM basics
  • Common treatments
  • Sun protection
  • Partnering with your medical team
  • Keeping track of medical records
  • Preparing for doctors’ visits
  • Seeking support

Our Two Guest Speakers, include:

  • Megan Curran, MD, is an attending physician in the Section of Rheumatology at Children’s Hospital Colorado and an associate professor at the University of Colorado School of Medicine. She is the Director of the Pediatric Rheumatology Fellowship Program where she organizes the training program for up-and-coming pediatric rheumatologists.
  • Dawn Wahezi, MD, MS, is Division Chief of Pediatric Rheumatology and Director of the Pediatric Rheumatology Fellowship Program at Children’s Hospital at Montefiore. Dr. Wahezi is an Associate Professor of Pediatrics at Albert Einstein College of Medicine.

Balancing Work and Caregiving: Strategies for Working Parents of Children with Juvenile Myositis

Balancing the demands of a career with the responsibilities of caregiving is a challenging task for any parent. For those with a child diagnosed with juvenile myositis (JM), a rare autoimmune disease affecting children, the challenge is heightened. Juggling work commitments while providing the necessary care and support for a child with JM can be taxing. In this article, we hope to provide you with a few effective strategies and insights to help working parents navigate this delicate balance.

Traveling with JM

Planning a trip or vacation can be challenging, especially when you have a child with juvenile myositis. With spring break and summer break just around the corner, the pressure might be even greater. However, at Cure JM, we want to help ensure that you and your child can enjoy all the delights of a vacation with minimal stress.

A Grandparent Spotlight – Anita

Cure JM recently had the pleasure of interviewing a remarkable individual who hails from Canton, Ohio, and brings a wealth of experience and love to her family. With a vibrant history spanning over five decades of marriage, three daughters, and a rich tapestry of grandchildren and great-grandchildren, Anita Mottice’s journey is as inspiring as it is heartwarming. As a retired nurse and devoted wife, Anita shares her profound connection with her family, particularly her grandchild Sydney, who has been diagnosed with Juvenile Myositis (JM).

Join Cure JM

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Cure JM supports families, patients, and the juvenile myositis research community.

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