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COPING FOR CAREGIVERS TOWN HALL
Join us Sunday, October 18th at 8:00pm EST
Coping with a life-altering diagnosis like Juvenile Myositis is difficult for the whole family. In this Town Hall, two mental health facilitators will explore some common emotional and physical side effects of caring for a child with a chronic disease.
You'll learn about real-world coping strategies, resilience, and practical tips that you can take home and use in your daily life.
This session is for all Cure JM caregivers, regardless of how long or recently your child has been diagnosed.
This Town Hall is presented by Carol Schwartz, LCSW and Suzanne Edison, MA, MFA.
FAMILY EDUCATIONAL CONFERENCE, PRESENTED BY SEATTLE CHILDREN’S HOSPITAL JM CENTER OF EXCELLENCE AND CURE JM’S PACIFIC NORTHWEST CHAPTER
Saturday, October 3rd, Noon - 3:00pm PST, 3:00 - 6:00pm EST
Join fellow Cure JM families for an afternoon to connect and learn with other families.
Juvenile Myositis clinicians will present the agenda below and answer audience questions.
Review the agenda here.
JEFF BORNEMISS RECOGNIZED WITH THE 2020 BARC SIMPSON COMMUNITY HERO AWARD
Cure JM Volunteer Jeff Bornemiss was recently awarded the 2020 Barc Simpson Community Hero Award in Columbus, Ohio.
A Columbus magazine featured Bornemiss and the community award. |
Jeff Bornemiss is a friend of Cure JM parents Zack and Sandi Harrison. Zack and Sandi are the Presidents of the Ohio Chapter of Cure JM and their daughter Sydney was diagnosed with JDM at the age of 3 in 2015.
In 2019 Jeff felt called to get involved in supporting Sydney and he pulled together a committee to organize the Inaugural Swing fore a Cure Columbus golf event, benefitting Cure JM Foundation.
Since 2019, Jeff and the committee have organized two successful golf events, raising over $30,000 to support Cure JM’s work.
Swing fore a Cure golf event this year. |
“I am so grateful to Jeff and his amazing leadership," says Zack Harrison. "Receiving this award is a big honor.”
In recognition of Jeff’s leadership and the Barc Simpson Community Hero Award, Simpson Strong Tie made an additional $2,500 donation to Cure JM.
“It is an honor to be able to help in this way,” says Jeff. “It is my pleasure to support all the kids like Sydney who go through so much with this disease.”
GRANDPARENT TOWN HALL
Tuesday, October 6th at 8:00pm EST
Register in advance for this meeting:
The Grandparent Town Halls feature research and program updates of interest to grandparents of Juvenile Myositis patients.
If the grandparents in your family are interested in being invited to these sessions you may forward this invitation to them or enter their email here to have them added to the invitation list.
We recognize and appreciate the importance of grandparents and look forward to seeing you on a Grandparent Town Hall soon.
Presenting Sponsor of the Cure JM Family News
Clinical Specialty Infusions Pharmacy
Do you have a story you would like to share? Contact enews@curejm.org
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