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Cure JM Foundation eNews

Our Mission: To find a cure and better treatments for JM while improving the lives of families affected by JM.

August, 2020

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Walk Strong Across America

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Skin Disease and Skin Protection

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Top-Rated Nonprofit

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Cure JM 2021 Family Conference Cancelled

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Flares Webinar

DONATE

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WALK STRONG ACROSS AMERICA

COVID-19 forced us to cancel our spring and summer walks. Our walks constitute a big part of our overall research budget. So, in response, Cure JM created the Walk Strong Across America. We invited our families and friends to walk from the comfort of their home, their yard, or their neighborhood – on or before July 4. More than 300 families from 45 states walked strong and raised $675,000! The incredible generosity will help us honor our research commitments that we have between now and June, 2021.

Your effort, time and dedication make our meaningful work possible. THANK YOU! Watch this video to get a sense of the fun and enthusiasm that Walk Strong Across America inspired!

Celebrate the success with our co-founders and three of the world's most renowned JM doctors.

The Zoom celebration featured:

  • Cure JM co-founders Tom and Shari recounting their son Parker's diagnosis, how they co-founded Cure JM and the amazing progress that has been made because of your generosity!
  • Dr. Ann Reed detailing the incredible progress that has been made in JM research and care since Cure JM's founding in 2003, to now.
  • Drs. Kim and Shenoi updating us on their work and what your support means to them!
  • Jim Minow, Cure JM's Executive Director, explaining why your support matters and details where your support goes.

SKIN DISEASE AND SKIN PROTECTION WEBINAR

How do you handle the constant environmental challenge of the sun? What is the best sunblock? How can you make sure your child is protected, even when you are not there? What are the latest approaches to managing skin disease and the best strategies for keeping my child sun safe?

This webinar features Susan Kim, MD, MMSc, and Adam I. Schiffenbauer, MD.

Watch the webinar here.


WE’RE A 2020 TOP-RATED NONPROFIT

Top-Rated

Thanks to our Cure JM Family, we won a 2020 Top-Rated Award from GreatNonprofits!

This award is the one and only people's choice award for nonprofits, where volunteers, donors, and people served by organizations are asked to share stories of inspiration. Thank you! We are so proud to serve this community.


CURE JM 2021 FAMILY CONFERENCE CANCELLED

Every year, we look forward to connecting with our Cure JM family to share community and the vision for the future that we're building together. But, COVID-19 is still a concern, so we've made the difficult decision to cancel the Cure JM Family 2021 Conference in Houston.

This was a tough call to make -- it's one of our favorite ways to celebrate all of you from around the world and our shared progress -- but we prioritize the health and safety of our families and friends. In the coming weeks, we'll be in touch with other opportunities for us to get together virtually.


SIGNS TO WATCH FOR IN FLARES WEBINAR RECORDING

In this webinar you will learn what a flare is, the challenges of diagnosing and predicting flares, and what is known about what you and your child can expect after a flare. Additionally, the doctors will review some of the latest research and advances in the study and predication of flares. This webinar features Kaveh Ardalan, MD, MS, and Jeffrey Dvergsten, MD.

Watch the recording here.

Do you have a story you would like to share? Contact enews@curejm.org

 

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