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Cure JM Families, Save the date!
The 11th Cure JM National Conference
will be Friday, June 29 – Sunday, July 1, 2018!!!
All conference activities will be held at the Key Bridge Marriott, 1401 Lee Hwy, Arlington, VA 22209. We have a special group rate of $119 per night plus taxes/fees (parking is free for our group). Use the below button to book your hotel rooms at the Cure JM group rate.
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Key Bridge Marriott |
Hotel Parking: Parking is free for registered conference hotel guests who are staying overnight. For the walk participants only, there will be a discounted rate available.
Registration for the Cure JM Conference will open in January. The cost to register for the conference is $100 per adult (age 18+). Under age 18 is free of charge.
All family members and grandparents of those affected by Juvenile Myositis (JM), including Juvenile Dermatomyositis (JDM) and Juvenile Polymyositis (JPM), are invited to attend.
Join over 100 other Cure JM families and prominent JM researchers for a spirited weekend of sharing and connecting with families, physicians, and researchers. Families will also learn about the latest in Juvenile Myositis research and treatments.
Friday, families will participate in small-group breakout sessions on a wide variety of topics of interest to Cure JM families.
Saturday, all participants are invited to attend interactive sessions with an elite group of JM experts who will give an update on the latest research and answer audience questions.
Sunday, families will walk in the “Walk Strong to Cure JM™” family fun walk to raise funds for JM research. The walk will feature food, fun, entertainment and a short walk beginning at 8am. This is a highlight of the weekend! More information coming soon.
Throughout the weekend:
- Families will get the latest information on Juvenile Myositis diagnosis, treatment, and research; participate in small group educational sessions and connect with other Cure JM families.
- Grandparents and extended family will get the latest information on Juvenile Myositis and attend a Grandparent Workshop focused on the special role that grandparents and extended family play in their families and the Cure JM community.
- Children will enjoy their own fun activities while their caregivers are in the educational sessions -- and back by popular demand, the Kids’ Fun Camp for all Cure JM children and siblings age 3-12.
- Teens & Tweens will enjoy activities and workshops, designed for patients and siblings to have fun and connect with each other while learning the basics of photography. Teens & tweens can also attend a teen-only breakout session and a workshop on transitioning to adult care.
- Young Adults will connect with other young adults with JM throughout the weekend in a variety of ways, including a Young Adult Coffee, suggested for ages 18 and up.
We look forward to seeing everyone in Washington, DC!
Sincerely,
Kristine Alderfer
Cure JM Board of Directors
Chair, National Conference Committee
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