Contact Us | Site Map
Raising Awareness, Supporting Families, Funding Research, Finding a Cure
DONATE
SHOW MENU HIDE MENU
  • Our Role & Impact

    About Cure JM

    • Our Story
    • Our Milestones
    • Our 2019 Impact Report
    • Our Financial Information
    • Regional Chapters

    Newsroom

    • Executive Director Reports
    • Monthly Family News
    • Event Photos
    • Cure JM in the News
    • Press Releases

    Leadership

    • Board of Directors
    • Medical Advisory Board
    • Regional Chapter Presidents
    • National Leadership Council
    • Honorary Advisory Council
    • Family Support Network Contacts
    • Grandparent Support Representatives
    • Fundraising Coaches
    • Cure JM Staff
    • Awards

    Multimedia

    • Cure JM Videos
    • Video for the Newly Diagnosed
    • Cure JM Event Photos
    • Myositis and You Book
    • Downloadable Brochures
    • Welcome Kits
  • About JM

    Juvenile Myositis Info

    • What is JM?
    • JM Links

    Photos

    • Signs and Symptoms of JM
    • The Faces of JM
    • Cure JM Angels
  • For Families

    Resources

    • Welcome Kit
    • Newly Diagnosed: Helpful Info
    • Newly Diagnosed: Video
    • Find a Doctor
    • Mental Health Resources
    • Newsletters
    • Cure JM Videos
    • JM Family Stories
    • JM Patient Online Journals & Other Links
    • Sample Medication Chart
    • Cure JM Conference Recaps

    Rehab Resources

    • Stretching Video

    Stay Connected

    • Regional Chapters
    • Regional Contacts
    • Family Support Network
    • Grandparent Support Network (C.A.R.E.)
    • Team JM Fundraising Network
    • Teen Portal
    • Events in Your Area
    • Social Media
    • Cure JM Conference

    Navigate the System

    • Top Ten Tips from JM Families
    • Health Insurance Tips & Links
    • School Resources
    • Social Security Resources
    • Other Government Resources
    • Sun Protection Products & Resources
    • Advice from JM Families
    • Q & A with a Child Life Specialist
    • Child’s Checklist for Dr. Visits

     

     

    •  
  • Healthcare Pros

    Support

    • Healthcare Professionals Homepage
    • Medical Advisory Board
    • Join the Cure JM Medical Network

    Grants & Fellowships

    • Research Funding/Grant Opportunities
    • Cure JM Grant Recipients
    • NEW! Research Fellowships

    CME Opportunities and Conferences

    • Accredited CME Activities
    • Cure JM Medical Conference

    Treatment

    • Consensus Protocols for JDM
    • Cure JM Research & Treatment Centers

    Research

    • Current Cure JM Funded Research
    • Published Research Studies
    • Cure JM Research & Treatment Centers
    • Other JM Research
    • Funding Opportunities for Researchers
    • Q & A with Latest Grantees
    • Studies Needing Volunteers

    Resources

    • Myositis and You eBook
    • Cure JM Conference Recaps
    • Cure JM Medical Network Newsletter
  • Research

    Cure JM Research & Treatment Centers

    • Cure JM Centers of Excellence

    Cure JM Survey Results

    • Early Diagnosis Initiative

    JM Research Studies

    • Cure JM Currently Funded Research and Grant Recipients
    • Cure JM Fellowship Recipients
    • Published Research Studies Supported by Cure JM
    • Cure JM Conference Recaps
    • Cure JM Funded Research 2006-2013
    • Additional JM Research

    JM Patients Needed

    • Research Studies Needing Volunteers
    • Patient Powered Research Network

    Funding Opportunities

    • Cure JM Research Grants: Eligibility and Requirements
    • Cure JM Fellowships
  • Get Involved

    Events

    • Regional Walks
    • Events in Your Area
    • National Conference and Fundraiser

    Connect

    • Join Cure JM
    • Regional Chapters

    Donate

    • One-Time Gift
    • Monthly Gift
    • Legacy Gift
    • Other Ways to Give
    • Printable Donation Form
    • Combined Federal Campaign

    Fundraise

    • Join Team JM Fundraising Network
    • Set-up a Family Fundraising Page
    • Fundraising Guidelines & Application
    • First 4 Steps for a Fundraiser
    • 54 Fundraising Ideas
    • Fundraising Toolkits
    • Fundraising Coaches
    • Fundraising Video
    • Impact Report for Sponsors
    • Awareness Tools
    • Attracting Media Coverage

    Participate in Research

    • Research Studies Needing Volunteers
    • Patient Powered Research Network

    Show Your Support

    • Cure JM Store
    • Shop at Amazon, iGive, etc.

    Join

    • Team JM
    • Grandparents CARE
    • Patient Registry / Family Support Network



Share/Bookmark

Cure JM Foundation Newsletter

Cure JM Newsletter

April, 2017

-

Thank You!

-

Input Needed

-

Forever Friends

-

Walk Strong to Cure JM™

-

Upcoming Events

-

Welcome Julie Shevlin to the Board of Directors

COMING SOON! The 2016 Cure JM Impact Report is coming soon - watch your mailbox for delivery!

THANK YOU, VOLUNTEERS!

In honor of National Volunteer Week, we want to send a heartfelt thank you to all of the volunteers that make Cure JM such an outstanding organization. In 2016, over 500 Cure JM families, friends, and supporters volunteered over 60,000 hours toward Cure JM's mission to find a cure for Juvenile Myositis and improve the lives of families affected by JM. Thank you for making a difference and giving so many families hope.


WE NEED YOUR INPUT

Based on an earlier survey and a focus group of Cure JM families at our annual conference, we have come up with 20 research priorities. We need your help to narrow these down to SEVEN, so that Cure JM can focus our efforts on research that matters most to our Cure JM families.

Please take this quick 4-question survey to select the research topics that matter most to you. Your input by Wednesday, May 3rd at 11:59 PM EST would be greatly appreciated!

TAKE THE SURVEY NOW


FOREVER FRIENDS

Clara and Cieera

Cure JM “Forever Friends” Clara (age 5) and Cierra (age 5)

Five year old Clara was diagnosed with JDM last year at the age of 5.

Despite all of the ups and downs of being diagnosed with a rare disease, her family has found hope through their involvement with Cure JM’s Chicago Chapter.

“None of us like this disease at all but the community and joy in the midst of it somehow makes it all seem OK,” says Clara's mom Lynn.

“These girls are now friends forever.”

View the upcoming events below to connect with Cure JM families in your region or contact Shannon Malloy at shannon.malloy@curejm.org for help starting an event in your area.


JOIN US AND
WALK STRONG TO CURE JM™

Walkers

Cure JM is excited to announce five upcoming Walk strong to Cure JM™ family fundraising walks in 2017. Come out and join us at a walk near you! Each walk will feature fun, entertainment, food, and a family-friendly fundraising walk. And forward this invitation to your friends & family in the area of a walk. To learn more or register for a walk contact your local walk leader or lauren.alvord@curejm.org.

  • CHICAGO, IL- Sunday, May 7, 2017
    Busse Woods, Elk Grove Village, IL
    Contact jennifer.coe@curejm.org or CLICK HERE TO SIGN UP
  • LONG ISLAND, NY - Saturday, May 13, 2017
    Eisenhower Park, Long Island, NY
    Contact tracy.vanness@curejm.org or CLICK HERE TO SIGN UP
  • WASHINGTON, D.C. - Sunday, June 4, 2017
    RIO Washington Center, Gaithersburg, MD. Contact simonetta.donofrio@curejm.org or CLICK HERE TO SIGN UP
  • SEATTLE, WA - Saturday, October 7, 2017
    Marymoor Park, Redmond, WA
    Contact julie.shevlin@curejm.org or CLICK HERE TO SIGN UP
  • DALLAS/FORT WORTH, TX - Saturday, November 11, 2017
    River Legacy Park, Arlington, TX
    Contact jennifer.howard@curejm.org or CLICK HERE TO SIGN UP

January 2018

  • HOUSTON, TX - Jan 13, 2018
    Rob Fleming Park, The Woodlands, TX
    Contact melissa.shelby@curejm.org or CLICK HERE TO SIGN UP

Spring 2018

  • Central Texas - Contact april.duley@curejm.org


UPCOMING EVENTS

Join fellow Cure JM families and supporters at an upcoming event near you. View the complete list of events here.

  • Swing for a Cure - April 27, Covington, LA. Contact ragan.cantrelle@curejm.org
  • Houston Family Fun Afternoon & Chapter Organizing Meeting - April 29, The Woodlands, TX. Contact melissa.shelby@curejm.org.
  • Dallas/Fort Worth Family Fun Afternoon & Chapter Organizing Meeting- April 30, Frisco, TX. Contact danielle.britten@curejm.org
  • Jam for JM - May 13, Normal, IL. Contact jennifer.coe@curejm.org.
  • Florida Family Fun Afternoon & Chapter Organizing Meeting- Saturday, May 20, Tampa, FL. Contact amy.gleason@curejm.org.
  • Pacific Northwest Meet & Greet and Walk Kickoff Party - Sunday May 21, Woodinville, WA. Contact jana.sall@curejm.org
  • Cowboy Brad Concert for Cure JM - Sat June 24, Estes Park, CO. Contact laurelcherie@gmail.com
  • Crossfit for Cure JM - Sat July 15, Williamsville, NY. Contact colleengrant1@hotmail.com.
  • Philadelphia Family Social Event - Sat July 15, Wayne, PA. Contact kate.ettingoff@curejm.org.

WELCOME JULIE SHEVLIN TO THE BOARD OF DIRECTORS

The Shevlin Family

The Shevlin Family receiving the Mason’s Miracle Award at the 2017 Cure JM Foundation National Conference

Cure JM is excited to welcome Julie Shevlin to the Board of Directors. Julie and her family live outside of Seattle and have been involved with Cure JM since 2009 when her daughter Tessa was diagnosed with JDM at the age of four.
“I’m thrilled to have Julie join the BOD,” says Cure JM Chairman, Rhonda McKeever. “She brings great passion and creativity to make a difference. She’s also been a proven leader of many very successful events and leading the important Family Support Network for Cure JM.”

Since Tessa’s diagnosis Julie has been an instrumental part of many Cure JM efforts. Julie is currently the Director of Cure JM’s Family Support Network which offers peer-support to 2,900 Cure JM families around the world.

Julie and her husband Justyn have also led many exceptional fundraising efforts. In total, they have raised nearly $200,000 for JM research by leading the inaugural 2016 Pacific Northwest “Walk Strong to Cure JM,” a very successful auction and dinner at the Seattle Space Needle, a bowl and skate party, five annual garage sales, and countless online family fundraising campaigns.

“From our first experiences with Cure JM, my husband and I have always been impressed with how inspiring and uplifting Cure JM is,” says Julie. “We were afraid as JM parents that getting too involved with Cure JM would bring us down, but we found the complete opposite. The more involved we have been with Cure JM the more hope we see for JM families and it's exciting to be a part of it.”

Contact Julie at julie.shevlin@curejm.org

Cure JM Logo

 

 

Newsletters

Current Newsletter

Past Newsletters

December 2020

November 2020

October 2020

September 2020

August 2020

March 2020

February 2020

January 2020

December 2019

November 2019

October 2019

September 2019

August 2019

July 2019

June 2019

May 2019

April 2019

March 2019

February 2019

January 2019

December 2018

November 2018

October 2018

September 2018

August 2018

July 2018

2018 National Family Conference Recap

June 2018

May 2018

April 2018

March 2018

February 2018

November 2017

October 2017

September 2017

August 2017

June 2017

May 2017

April 2017

March 2017

February 2017

January 2017

November 2016

October 2016

September 2016

August 2016

July 2016

June 2016

May 2016

April 2016

March 2016

February 2016

January 2016

October 2015

September 2015

July 2015

June 2015

May 2015

April 2015

March 2015

November 2014

August 2014

August 2014 Family Version

July 2014

June 2014

May 2014

March 2014

February 2014

October 2013

August 2013

May 2013

Spring 2013

Fall/Winter 2012

Summer 2012

Spring 2012

2011 Holiday Message

December 2011

November 2011

Fall 2011

July 2011

May 2011

March 2011

February 2011

January 2011

December 2010

November 2010

News & Events

Recent News

Upcoming Events

Cure JM in the News

Cure JM Newsletter

Team JM Homepage

Cure JM Foundation Nonprofit Overview and Reviews on GreatNonprofits
Top-Rated Since 2011
Guidestar Exchange
BIA Seal

CONTACT US

Cure JM Foundation
19309 Winmeade Drive
Suite 204
Leesburg, VA 20176
(202) 596-6267

Donate Now

IRS Tax ID #35-2222262
Corporate Matching Donations
Privacy Policy
Non-Discrimination & Inclusion

This website is provided for educational and informational purposes only. Cure JM is not engaged in rendering medical advice or professional services and this information should not be used for diagnosing or treating a health problem. The site author and the content providers make no representation or warranties, expressed or implied. Providing links to other websites does not imply that Cure JM endorses the information or services provided on those websites. The organizations operating those websites are solely responsible for the content found on their websites.
©2004-2021 Cure JM Foundation. All rights reserved.

Privacy Policy | Non-Discrimination Policy | Legal Disclaimer | Contact Us