JM Links

Looking for more information on JM? Want to see how other people affected by JM are coping? The below resources may be able to help you in your journey to understand JM and manage its impact on your family.


Myositis and You Book Cover Myositis and You: A Guide to Juvenile Dermatomyositis for Patients, Families, and Healthcare Providers

Edited by Lisa G. Rider, MD, Lauren M. Pachman, MD, Frederick W. Miller, MD, PhD and Harriet Bollar
Published by TMA

This comprehensive guide to juvenile dermatomyositis was funded by Cure JM Foundation and includes expert information from over 80 medical professionals.

Myositis and you will soon be available as an eBook. Check back soon for more details.

Coping with a Myositis Disease Book CoverCoping with a Myositis Disease

By James R. Kilpatrick, Forward by Dr. Aziz Shaibani

Available at:

Tattooed with Flowers Book CoverTattooed With Flowers
by Suzanne Edison

These 10 poems reflect a mother's journey with her daughter from diagnosis of JDM through the first 3 years. They are excerpted from a larger book that was a finalist in the 2008 Midnight Sun Chapbook Contest. Published with grants from The Seattle Office of Arts and Culture and The Individual Artists program of 4Culture of King County, Seattle, Washington. All proceeds from the sale of this book go to Cure JM Foundation.

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It's Not Just Growing Pains Book CoverIt's Not Just Growing Pains: A Guide to Childhood Muscle, Bone and Joint Pain, Rheumatic Diseases, and the Latest Treatments

By Dr. J. A. Thomas Lehman M.D.

Available at:

Living with Myositis Book Cover Myositis: Facts, Feelings and Future Hopes

By Jenny Fenton

Available at:

Living with Juvenile Arthritis: A Parent's Guide Book CoverLiving with Juvenile Arthritis:
A Parent's Guide

by Kimberly Poston Miller

This is a must-read for parents of children just receiving a diagnosis of Juvenile Arthritis or any other autoimmune disease, such as Juvenile Myositis (JM). It's an essential guidebook for dealing with the social, family, school and medical aspects of a chronic illness. Kimberly Poston Miller provides solid advice on how to maximize your time with doctors, work with insurance companies, and advocate for your child. She focuses on how a diagnosis affects the entire family, and the importance of nurturing these relationships within the constraints of caring for a child with a chronic illness. Most importantly, when you read this book, you will feel like you have a new source of support and a new friend in your child's battle against JA or JM, or any disease. Kimberly provides a sense of warmth, compassion, hope and encouragement that will give you the strength necessary to begin or continue your journey as a successful caregiver.
Book Review by: Shari Hume, Cure JM Foundation Co-Founder

Available at:

Multimedia by JM Familes and
Artists Supporting Cure JM Foundation

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General Information

Please note that Cure JM Foundation cannot control and is not responsible for any linked content.