JM Links
Looking for more information on JM? Want to see how other people affected by JM are coping? The below resources may be able to help you in your journey to understand JM and manage its impact on your family.
Books
Myositis and You: A Guide to Juvenile Dermatomyositis for Patients, Families, and
Healthcare Providers
Edited by Lisa G. Rider, MD, Lauren M. Pachman, MD, Frederick W. Miller, MD, PhD and Harriet Bollar
Published by TMA
This comprehensive guide to juvenile dermatomyositis was funded by the Cure JM Foundation and includes expert information from over 80 medical professionals.
Available at: www.amazon.com
Tattooed With Flowers
by Suzanne Edison
These 10 poems reflect a mother's journey with her daughter from diagnosis of JDM through the first 3 years. They are excerpted from a larger book that was a finalist in the 2008 Midnight Sun Chapbook Contest. Published with grants from The Seattle Office of Arts and Culture and The Individual Artists program of 4Culture of King County, Seattle, Washington. All proceeds from the sale of this book go to the Cure JM Foundation.
To order, please contact:
Coping with a Myositis Disease
By James R. Kilpatrick, Forward by Dr. Aziz Shaibani
www.myositissupportgroup.org
Available at: www.amazon.com
It's Not Just Growing Pains: A Guide to Childhood Muscle, Bone and Joint Pain, Rheumatic Diseases, and the Latest Treatments
By Dr. J. A. Thomas Lehman M.D.
Available at: www.amazon.com
Living With Myositis
By Jenny Fenton
Multimedia by JM Familes and
Artists Supporting the Cure JM Foundation
- Erin's Song - You're Beautiful Today
(Music by Cure JM Dad James Cademan) -
To purchase on iTunes
(All proceeds from downloads will benefit Cure JM): http://itunes.apple.com/us/artist/james-cademan/id411416198
Watch the Music Video http://www.youtube.com/watch?v=Gufs41jQzzk - Can't Stop the Rain
(Written by G.I. and Jo)
The song was inspired by a young girl with JDM and cover art for the song wSprovided by a JM patient. (All proceeds from downloads will benefit Cure JM):
http://itunes.apple.com/us/album/cant-stop-the-rain-single/id544997954 - Grace's Journey
www.youtube.com/watch?v=tZsUb62qdHk - A Story of Prednisone
juliecaine.com/blog/?p=158 - Mason's Story - "Miracle"
(Music by Jessica Lerner)
www.youtube.com/watch?v=g2gabwAri9A - Mason's Story - "Hope and Prayer"
(Music by Savannah Outen)
www.youtube.com/watch?v=E1T86xM3RFw - Parker’s Journey and the Start of Cure JM
www.youtube.com/watch?v=fAAdqkpoojE - Cure JM Foundation 2009 Fundraisers
www.curejm.org/videos/CUREJMFINAL_09.wmv
Blogs & Websites by JM Patients and Families
- Brianna's Journal
www.caringbridge.com/tx/brianna - Carly's Personal Page
www.geocities.com/toughchic11/my_site.html - Jenn's Web Page
www3.caringbridge.org/tx/jenn - Julia's JDMS Diary
www.ralphb.net/JDMS - Madeleine’s Journal
www.caringbridge.org/tx/madeleine - More Than Skin Deep
(Documenting the life of a young woman with JDM)
catiekeen.blogspot.com - Natasha Aroha - A New Zealand Girl's Story
www.natasha.aupouri.com - Ximena's Adult JDM Blog: My experience with JDM/
Mi experiencia con dermiositis juvenil
www.myspace.com/jdmblog
Please note that the Cure JM Foundation cannot control and is not responsible for any linked content.
