Transitioning from Pediatric to Adult Care

In this presentation, join Rodolfo Curiel, MD, FACP, FACR, and Rebecca Sadun, MD, Ph.D., review strategies for parents to aid JM kids in their transition from pediatric to adult care.

The transition aims to optimize health and assist youth in reaching their full potential. Common steps to prepare for transition include:

  • Establishing a policy
  • Tracking progress
  • Administering transition
  • Conducting readiness assessments
  • Planning for adult care
  • Transferring and integrating into an adult practice

Preparing for the transition to adult care may begin with patients beginning to take an age-appropriate role in their care as early as the tween years.

Featuring:

Rodolfo Curiel, MD, FACP, FACR is the Program Director of the Rheumatology Fellowship, Division Director, Director of the GW Myositis Center and Associate Professor of Medicine at The George Washington University Medical Faculty Associates. The GW Myositis Center was created with the help of a generous grant from Cure JM.

Rebecca E. Sadun, MD, Ph.D., is a pediatric and adult rheumatologist at Duke University, a Cure JM Center of Excellence. 

Balancing Work and Caregiving: Strategies for Working Parents of Children with Juvenile Myositis

Balancing the demands of a career with the responsibilities of caregiving is a challenging task for any parent. For those with a child diagnosed with juvenile myositis (JM), a rare autoimmune disease affecting children, the challenge is heightened. Juggling work commitments while providing the necessary care and support for a child with JM can be taxing. In this article, we hope to provide you with a few effective strategies and insights to help working parents navigate this delicate balance.

What is Juvenile Myositis?

Juvenile myositis, including juvenile dermatomyositis and juvenile polymyositis, is a group of rare and life-threatening autoimmune diseases, in which the body’s immune system attacks its own cells and tissues.

Traveling with JM

Planning a trip or vacation can be challenging, especially when you have a child with juvenile myositis. With spring break and summer break just around the corner, the pressure might be even greater. However, at Cure JM, we want to help ensure that you and your child can enjoy all the delights of a vacation with minimal stress.

Join Cure JM

Membership is free and we’ll connect you with a network of support, encouragement, and resources.

Cure JM supports families, patients, and the juvenile myositis research community.

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