School Resources

Informing your child’s school personnel about juvenile myositis is important. Parents have reported a variety of avenues they have taken in order to do this. Depending on your child’s situation and your school district, the following information may be of assistance to you:

Communicating with Your Child’s Educators

504 and IEP Plan Information

State Resource Sheets for Disability Related Issues
www.nichcy.org/states.htm

Special Education & Rehabilitative Services Legislation (IDEA & The Rehabilitation Act)
www.ed.gov/policy/speced/leg/edpicks.jhtml?src=ln

Section 504 of the Rehabilitation Act of 1973
www2.ed.gov/about/offices/list/ocr/504faq.html

The Individual Family Service Plan (IFSP)
www.eric.ed.gov/PDFS/ED449634.pdf

IEP’s versus 504 Plans
www.slc.sevier.org/iepv504.htm

Guide to the Individualized Education Program
www.ed.gov/parents/needs/speced/iepguide/index.html

What is Juvenile Myositis?

Juvenile myositis, including juvenile dermatomyositis and juvenile polymyositis, is a group of rare and life-threatening autoimmune diseases, in which the body’s immune system attacks its own cells and tissues.

Treatment Plans for Juvenile Myositis

A treatment plan is based on many factors, including the severity and expression of the juvenile dermatomyositis (JDM). Each case is different and the symptoms can change over time.

Join Cure JM

Membership is free and we’ll connect you with a network of support, encouragement, and resources.