School Accommodations for Juvenile Myositis

Many students with juvenile dermatomyositis or juvenile polymyositis need some special accommodations at school. And although each student is different, here is a list of some common accommodations that other Cure JM families have found helpful in the past.

For Chronic Illness/Fatigue:

  • Extended time for tests
  • Alternate time for tests
  • Alternate place for tests
  • Reduced workload
  • Shared notes
  • Modified Assignments
  • Extra breaks
  • “Self-limit” PE

Medical Accommodations:

  • Water bottle/snacks allowed
  • Sun protection (hat, sunblock, etc)
  • Seat away from windows
  • Movement and rest breaks, allowed as needed
  • Extra Restroom Breaks, allowed as needed
  • Physical therapy or occupational therapy in school (as eligible)

Muscle Pain & Weakness:

  • Space to rest in the classroom, such as a beanbag in the back of the class
  • Elevator Pass
  • Wheeled Backpack
  • 2nd set of books (one for at home)
  • Oral testing / minimal writing
  • Not graded on handwriting, larger space to write, or computer if easier
  • Alternate testing
  • Dictated homework
  • Adaptive technology
  • Preferential Scheduling to reduce walking
  • Spare textbook kept in classroom
  • Locker placement near classes

For Immunosuppression:

  • Alternate rest area in cold/flu season (so not resting in Nurse’ Suite)
  • IHP & Medicine Authorizations, as needed
  • Excused absences
  • Notification from the nurses office when certain illnesses are “going around” (such as flu, chicken pox, etc.)
  • Permission to carry own water bottle and/or sanitizer
  • Access to handwashing in the classroom

To Assist with Concentration/ Organization:

  • Preferential Seating
  • “Home-work” Buddy
  • Smaller quizzes instead of larger tests
  • Oral assessment
  • Shared notes
  • Advance notice of field trips

This isn’t a comprehensive list, but we hope that it can be a good conversation starter for your family and your school.

What is Juvenile Myositis?

Juvenile myositis, including juvenile dermatomyositis and juvenile polymyositis, is a group of rare and life-threatening autoimmune diseases, in which the body’s immune system attacks its own cells and tissues.

Treatment Plans for Juvenile Myositis

A treatment plan is based on many factors, including the severity and expression of the juvenile dermatomyositis (JDM). Each case is different and the symptoms can change over time.

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