Juvenile Myositis Research Links

Three little kids holding a sign that says "Hope"

Juvenile Dermatomyositis: A 20-year Retrospective Analysis of Treatment and Clinical Outcomes

February, 2015
Chi Sun, Jyh-Hong Lee, Yao-Hsu Yang, Hsin-Hui Yu, Li-Chieh Wang, Yu-Tsan Lin and Bor-Luen Chiang
www.pediatr-neonatol.com/article/S1875-9572(14)00093-X/fulltext

Disease activity and prognostic factors in juvenile dermatomyositis: a long-term follow-up study applying the Paediatric Rheumatology International Trials Organization criteria for inactive disease and the myositis disease activity assessment tool

February, 2014
Helga Sanner, Ivar Sjaastad and Berit Flatø
rheumatology.oxfordjournals.org/content/early/2014/03/29/rheumatology.keu146.full

Juvenile Dermatomyositis: New Developments in Pathogenesis, Assessment and Treatment

Lucy R Wedderburn, MD PhD and Lisa G Rider, MD
www.ncbi.nlm.nih.gov/pmc/articles/PMC2774891/

JDM Significantly Affects Quality of Life

Presented by Samantha Kountz-Edwards M.S., Michael Schmidt M.S., Natasha Quinn, Maxwell Rappoport, Wendy Packman, J.D., Ph.D., at the American Psychological Annual Convention in Honolulu Hawaii
July31st – August 4th, 2013
Click here to read

National Institute of Environmental Health Sciences (NIEHS) Autoimmune Diseases Fact Sheet

www.niehs.nih.gov/health/materials/autoimmune_diseases_508.pdf

Juvenile Dermatomyositis: A Case Study

Published in the medical journal Pediatric Health Care, this study was co-authored by Registered Nurse and
Cure JM Mom Michelle Schneider
Read the case study

Clinical Outcomes In JDM

(requires site registration, but registration is free)
www.medscape.com/viewarticle/444390

Clinical Trials

www.clinicaltrials.gov/ct/gui/action/SearchAction?term=Connective+Tissue+Disorders

Dermatomyositis

www.emedicine.com/derm/topic98.htm
www.thedoctorsdoctor.com/diseases/dermatomyositis.htm

Juvenile dermatomyositis associated with lipodystrophy

www.ijdvl.com/article.asp?issn=0378-6323;year=2003;volume=69;issue=5;spage=343;epage=344;aulast=Irene

Doctor with parent and juvenile myositis patient.

Treatment Plans for Juvenile Myositis

A treatment plan is based on many factors, including the severity and expression of the juvenile dermatomyositis (JDM). Each case is different and the symptoms can change over time.

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