Grandparent Council Meeting Recap

July 2022

  • Two new grandparents joined the council, and Betsy León was welcomed to the Grandparents Council as part of staff support along with Shannon Malloy.
  • Participants reviewed and approved minutes from the June 23 meeting. These notes will be stored on the Grandparent Council Bookshelf in the future, along with numerous other useful resources.
  • The Grandparents Calling Tree was launched with six participating Grandparents with years of experience with JM grandchildren. These grandparents are a resource for one-on-one communication from grandparents who may have questions or concerns about JM. Their bios are listed on the Grandparent Council Bookshelf.
  • Grandparent Council Bookshelf can be reached at the following link: https://drive.google.com/drive/u/0/folders/1AE3vPmsD3TVlBgMn5HBjomqGyH8IWZO5
  • The last 30 minutes of the meeting was an informal exchange of information about questions and concerns from attending grandparents about their grandchildren. 
  • The Cure JM Family Conference is back! The conference will take place June 29 – July 2, 2023, in Washington DC, with more details to follow.
  • The next Grandparent Council Meeting is planned for Thursday, August 25, 2022, and will be an Educational Town Hall Meeting. Dr. Pachman will present JM 101 as an introduction to Juvenile Myositis for grandparents. The date has not been confirmed with Dr. Pachman and is subject to change. Stay tuned for confirmation of the meeting date in future communications.

Tips from JM Families

Helpful tips from other JM families on topics like reducing anxiety during treatments, shots and blood draws, dentist visits, sun shades, journaling, and more!

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