November 17, 2022 Grandparent Council (GPC) Meeting Recap

Meeting notes are posted in the Grandparent Council Bookshelf

The November Grandparents Council (GPC) meeting was held on November 17, 2022. These meeting notes, along with previous meeting notes, are posted in the Grandparent Council Bookshelf on google docs: Recent GPC meeting notes.

Thank you for joining us as we gear up for holiday celebrations with our loved ones.

Shannon and Betsy discussed a Grandparent’s impact on a JM patient and their family.

A special announcement was made introducing four new research grants.

After presentations made by Shannon and Betsy, attendees were encouraged to participate in Q&A, which led to a lively discussion.

Several grandparents explained how they send emails to family and friends for Giving Tuesday. As a part of the email, they put a face to JM, which tends to be successful in generating a donation.

Here are helpful links to learn more about Juvenile Myositis:

Additional Information:

Ideas on how to support your family as a grandparent:

  • Mail your grandchild a card with stickers on a “shot day.”
  • Play a game with your grandchild (through letters or online).
  • Meet online to chat and catch up.
  • Read a story on an infusion day.
  • Offer to babysit.
  • Take the sibling(s) out for the day.

For more great ideas, please read the article, Nine Ways Grandparents Can Support Their Family After Diagnosis.

Ways to Connect with your Cure JM Grandparent Community:

How Grandparents Can Help This Holiday Season

Sharing your grandchild’s page supports Cure JM’s efforts to attain our goal of raising $750,000 for important scientific investigations led by compassionate researchers who want to improve treatments and care and find a cure. Donations accepted throughout December.

  • Share a letter
  • Share a quick social media post, text, or email
  • Talk to a friend or someone you know about your story
  • Share a general message with this link www.curejm.org/give

Follow our progress toward the goal at www.curejm.org/give. Please contact Betsy Leon at betsy.leon@curejm.org or 858.220.0039 if you have any questions and if you’d like any support on how to share.

Chapter Facebook Groups

Connect locally! Join one of our Cure JM Chapter Facebook Groups and meet other Cure JM Families at an upcoming event in your area. Connecting

Join Cure JM

Membership is free and we’ll connect you with a network of support, encouragement, and resources.

Cure JM supports families, patients, and the juvenile myositis research community.