As a JM parent, you\u2019ve likely heard about the critical role that sun exposure and other environmental factors can play in juvenile myositis. In collaboration with leading experts, we have curated a list of products that can help protect your child from the UV rays that come from the sun and even harmful artificial light. <\/p>\n\n\n\n
\u201cI think sunscreen should be a daily part of life for people with a sun-sensitive condition. So I think of this [sunscreen and sun protective clothing] as medicine. This is a medicine,\u201d Dr. Kalyani Marathe, Division Director of Dermatology at Cincinnati Children\u2019s Hospital, stated in a recent Cure JM \u201cAsk the Doc\u201d Town Hall. She also suggests that ultraviolet light from the sun can cause juvenile myositis to worsen. <\/p>\n\n\n\n
Cure JM Foundation does not officially endorse any of the products, companies, or websites listed here. While most of these products, companies, and websites have been recommended by doctors and foundations, please do your own research before buying products. If you have any questions regarding the interaction between your child\u2019s JM and a specific product, your doctor may be able to guide you. The Skin Cancer Foundation offers many wonderful recommendations for sunscreen, accessories, clothing, outdoor shade options, and window coverings. https:\/\/www.skincancer.org\/recommended-products\/<\/a><\/p>\n\n\n\n ONLINE SHOPPING<\/strong><\/p>\n\n\n\n Cabana Life \u2013 a website offering sun-protective clothing for all ages https:\/\/www.cabanalife.com\/index.php?cPath=2&osCsid=4ea2fb77410b9b511d0cf3061e326b5a<\/a><\/p>\n\n\n\n Columbia Sportswear \u2013 this outdoor store offers plenty of UV-protective clothing for men, women, and children www.columbia.com<\/a><\/p>\n\n\n\n Coolibar \u2013 this website, recommended by doctors and the Skin Cancer Foundation, offers both swimsuits and regular clothing for all ages www.coolibar.com<\/a><\/p>\n\n\n\n Free Fly Apparel \u2013 this company offers sun-protective bamboo clothing that is soft, quick drying, anti-odor, and breathable https:\/\/freeflyapparel.com<\/a><\/p>\n\n\n\n Lands Ends \u2013 search UPF clothing to find clothing that offers UV protection for all www.landsend.com<\/a><\/p>\n\n\n\n REI \u2013 this camping store carries popular UPF clothing like Columbia & as well as store brand clothing line; also a wide variety of UPF-rated hats \u2013 www.rei.com<\/a><\/p>\n\n\n\n Solumbra\/Sun Precautions \u2013 this site offers UPF rated clothing www.sunprecautions.com\/shop\/all<\/a><\/p>\n\n\n\n UVSkinz \u2013 this website offers clothing and swimsuits with UPF 50+ certifications; children\u2019s swimsuits are also available at Costco https:\/\/www.uvskinz.com<\/a><\/p>\n\n\n\n Vapor Apparel \u2013 this company has earned the Skin Cancer Foundations Seal of Recommendation and offers a wide variety of sun-protective clothing https:\/\/vaporapparel.com<\/a><\/p>\n\n\n\n LOCAL RETAILERS<\/strong><\/p>\n\n\n\n Academy \u2013 a sporting\/camping store carrying various brands of UPF clothing https:\/\/www.academy.com\/<\/a><\/p>\n\n\n\n Columbia \u2013 has a line of UPF protective clothing which is carried by several local sporting goods\/camping goods stores, ie \u2013 Dick\u2019s Sporting Goods, Bass Pro Shops, REI, etc. https:\/\/www.columbia.com\/<\/a><\/p>\n\n\n\n Land\u2019s End \u2013 a practical and comfortable clothing store that offers UPF clothing in the form of rash guards and swim apparel https:\/\/www.landsend.com\/<\/a><\/p>\n\n\n\n REI \u2013 this camping store carries popular UPF clothing like Columbia & as well as a store brand clothing line www.rei.com<\/a><\/p>\n\n\n\n Sunveil \u2013 Stores are located mostly in Canada, but they offer a range of sun-protective clothing for all ages https:\/\/www.sunveil.com\/<\/a><\/p>\n\n\n\n WASH-IN<\/strong><\/p>\n\n\n\n Rit Sunguard \u2014 a chemical UV protectant you wash in to clothing via washing machine -lasts for 20+ washes \u2013 $10.49\/box = 1 load \u2013 better on cotton & cotton blends \u2014 sometimes available at Walmart or online at Amazon https:\/\/www.sunguarduv.com<\/a> <\/p>\n\n\n\n SWIMSUITS\/RASH GUARDS<\/strong><\/p>\n\n\n\n Boden \u2013 rash guards are available with sun protection https:\/\/www.bodenusa.com\/en-us<\/a><\/p>\n\n\n\n Coolibar \u2013 full-body suits also available http:\/\/www.coolibar.com<\/a><\/p>\n\n\n\n Fun Sun Wear \u2013 An Australian company for one piece adult & child\/baby-sized swimsuits, also includes sports clothing, sun hats & accessories https:\/\/funsunwear.com.au\/index.php<\/a><\/p>\n\n\n\n StingRay \u2013 an Australian company for one-piece swimsuits, rash guards, swim pants, etc. www.stingray.com.au<\/a> <\/p>\n\n\n\n ACCESSORIES (SUNGLASSES, HATS, UMBRELLAS\/PARASOLS, STROLLER COVERS, SHAWLS, SUNSHADES, ETC.)<\/strong><\/p>\n\n\n\n Baby Banz \u2013 http:\/\/www.banzworld.com<\/a> <\/p>\n\n\n\n Coolibar \u2013 www.coolibar.com<\/a><\/p>\n\n\n\n Solumbra\/Sun Precautions \u2013 www.sunprecautions.com\/shop\/all<\/a><\/p>\n\n\n\n Sun Patch- a reusable waterproof sunblock patches for under the eyes https:\/\/sunpatch.com<\/a><\/p>\n\n\n\n Sunday Afternoons Hats \u2013 www.sundayafternoons.com<\/a><\/p>\n\n\n\n SUNSCREEN<\/strong><\/p>\n\n\n\n Environmental Working Group \u2013 2015 Sunscreen Guide \u2013 rated the efficacy & safety of 1,400 sunscreens, sun blocks, lip balms, and moisturizers on the basis of their advertising claims, etc., esp. in relation to their UV-protection claims. Lists include \u201cHall of Shame,\u201d \u201cBest of Sunscreens,\u201d & \u201cFind Your Sunscreen\u201d. App for iPhone avail. www.ewg.org\/2015sunscreen<\/a><\/p>\n\n\n\n For examples of great sunscreens for all colors of skin, watch our Town Hall with Dr. Angeles-Han and Dr. Marathe https:\/\/www.curejm.org\/ask-the-doc-sun-protection-tricks-tips-for-summer-2023\/<\/a><\/p>\n\n\n\n UV-MEASURING DEVICES<\/strong><\/p>\n\n\n\n Apps are available on your phone for measuring the UV in your area.<\/p>\n\n\n\n CAR WINDOW TINTING<\/strong><\/p>\n\n\n\n Types: Professional tinting companies can tint most car windows & provide manufacturer info for your to research re: UVA\/VB before installation. Also be sure to know your local DMV regulations re: tinting. Every state has different laws about how dark the windows can be. Need a prescription to take the windows darker than the legal limit.<\/p>\n\n\n\n To learn more about the effects of light on JM patients, please watch the following insightful presentation by leading experts on this topic:<\/strong><\/p>\n\n\n\n
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Shades attach with suction cups & raise\/lower; fit side windows only \u2013 available via local stores.<\/p>\n\n\n\n
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