{"id":94883,"date":"2026-01-26T11:24:46","date_gmt":"2026-01-26T16:24:46","guid":{"rendered":"https:\/\/www.curejm.org\/?page_id=94883"},"modified":"2026-01-26T12:35:34","modified_gmt":"2026-01-26T17:35:34","slug":"unete-a-nosotros-en-una-proclamacion-de-agradecimiento-en-el-dia-internacional-de-las-enfermedades-raras","status":"publish","type":"page","link":"https:\/\/www.curejm.org\/es\/join-us-in-a-proclamation-of-thanks-at-nih-rare-disease-day\/","title":{"rendered":"\u00danase a nosotros en una proclamaci\u00f3n de agradecimiento en el D\u00eda de las Enfermedades Raras del NIH"},"content":{"rendered":"<div data-elementor-type=\"wp-page\" data-elementor-id=\"94883\" class=\"elementor elementor-94883\" data-elementor-post-type=\"page\">\n\t\t\t\t<div class=\"elementor-element elementor-element-7d1a86c1 e-flex e-con-boxed e-con e-parent\" data-id=\"7d1a86c1\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-9eebc71 elementor-widget__width-initial elementor-widget elementor-widget-image\" data-id=\"9eebc71\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img fetchpriority=\"high\" decoding=\"async\" width=\"800\" height=\"450\" src=\"https:\/\/www.curejm.org\/wp-content\/uploads\/I-heart-rare-3-23.jpg\" class=\"attachment-large size-large wp-image-39606\" alt=\"\" srcset=\"https:\/\/www.curejm.org\/wp-content\/uploads\/I-heart-rare-3-23.jpg 1500w, https:\/\/www.curejm.org\/wp-content\/uploads\/I-heart-rare-3-23-1000x563.jpg 1000w, https:\/\/www.curejm.org\/wp-content\/uploads\/I-heart-rare-3-23-500x281.jpg 500w, https:\/\/www.curejm.org\/wp-content\/uploads\/I-heart-rare-3-23-768x432.jpg 768w, https:\/\/www.curejm.org\/wp-content\/uploads\/I-heart-rare-3-23-18x10.jpg 18w\" sizes=\"(max-width: 800px) 100vw, 800px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-7866f4d elementor-widget elementor-widget-button\" data-id=\"7866f4d\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-button-wrapper\">\n\t\t\t\t\t<a class=\"elementor-button elementor-button-link elementor-size-sm\" href=\"https:\/\/docs.google.com\/forms\/d\/e\/1FAIpQLSdOAlV4pvxe1_gcjfE07AWxdtxOqBYjkWxUZcGO5Ag3AUgx0A\/viewform\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t\t\t\t<span class=\"elementor-button-text\">Firmar la Proclamaci\u00f3n<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-577e67d4 elementor-widget__width-initial elementor-widget elementor-widget-text-editor\" data-id=\"577e67d4\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<figure class=\"wp-block-image size-full is-resized\">Estimada comunidad Cure JM:,<\/figure>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>Es un honor para m\u00ed compartir que Cure JM ha sido seleccionada como ponente principal sin \u00e1nimo de lucro en la <strong>D\u00eda de las Enfermedades Raras de los Institutos Nacionales de Salud, el 27 de febrero de 2026.<\/strong>.<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>Durante esta sesi\u00f3n, tendr\u00e9 la oportunidad de hablar con m\u00e1s de 600 cient\u00edficos en persona y con m\u00e1s de 2500 participantes que se unir\u00e1n en l\u00ednea sobre c\u00f3mo la colaboraci\u00f3n entre Cure JM, los NIH y el Centro Nacional para el Avance de las Ciencias Traslacionales (NCATS) ha ayudado a avanzar en la investigaci\u00f3n de la miositis juvenil y ha hecho posible un progreso real. Un ejemplo claro de este progreso es la terapia CAR T, que se estudi\u00f3 en el NCATS y ahora se encuentra en fase de ensayos cl\u00ednicos para la miositis juvenil.<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>Como parte de esta sesi\u00f3n, presentar\u00e9 un <strong>Proclamaci\u00f3n de agradecimiento al NCATS<\/strong> en nombre de la comunidad Cure JM.<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>Invitamos a familias, j\u00f3venes adultos, abuelos, m\u00e9dicos y defensores a unirse y a\u00f1adir su nombre a esta Proclamaci\u00f3n de agradecimiento. <span style=\"text-decoration: underline;\">El NCATS desempe\u00f1a un papel fundamental en la aceleraci\u00f3n de la colaboraci\u00f3n y en ayudar a trasladar los descubrimientos prometedores del laboratorio a los pacientes.<\/span>. En la miositis juvenil, este liderazgo ha ayudado a sentar las bases para terapias innovadoras, incluida la exploraci\u00f3n de CAR-T y otros tratamientos emergentes.<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>Esta proclamaci\u00f3n es simplemente una expresi\u00f3n de agradecimiento. Es una oportunidad para que nuestra comunidad reconozca el impacto del trabajo del NCATS y la esperanza que esta investigaci\u00f3n brinda a los ni\u00f1os y las familias afectados por enfermedades raras.<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>La Proclamaci\u00f3n de Agradecimiento se entregar\u00e1 formalmente al NCATS en el D\u00eda de las Enfermedades Raras del NIH como expresi\u00f3n colectiva de agradecimiento de la comunidad Cure JM.<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p><a href=\"https:\/\/docs.google.com\/forms\/d\/e\/1FAIpQLSdOAlV4pvxe1_gcjfE07AWxdtxOqBYjkWxUZcGO5Ag3AUgx0A\/viewform\"><strong>Agregue su nombre aqu\u00ed<\/strong><\/a><\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>Gracias por apoyar a Cure JM y unirse a nosotros para reconocer las colaboraciones que hacen posible nuestro progreso vital.<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>Con agradecimiento,<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p><strong>Jim Minow<\/strong><\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>Director Ejecutivo, Fundaci\u00f3n Cure JM<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p><!-- \/wp:paragraph --><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>","protected":false},"excerpt":{"rendered":"<p>Sign the Proclamation Dear Cure JM Community, I am honored to share that Cure JM has been selected as a nonprofit keynote speaker at the National Institutes of Health Rare Disease Day on February 27, 2026. During this session, I will have the opportunity to speak to more than 600 scientists in person and over [&hellip;]<\/p>\n","protected":false},"author":24,"featured_media":39606,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_seopress_titles_title":"","_seopress_titles_desc":"","_seopress_robots_index":"","_seopress_robots_follow":"","_seopress_robots_imageindex":"","_seopress_robots_snippet":"","_seopress_robots_primary_cat":"","_seopress_robots_breadcrumbs":"","_seopress_robots_freeze_modified_date":"","_seopress_robots_custom_modified_date":"","_seopress_robots_canonical":"","_seopress_social_fb_title":"","_seopress_social_fb_desc":"","_seopress_social_fb_img":"","_seopress_social_fb_img_attachment_id":0,"_seopress_social_fb_img_width":0,"_seopress_social_fb_img_height":0,"_seopress_social_twitter_title":"","_seopress_social_twitter_desc":"","_seopress_social_twitter_img":"","_seopress_social_twitter_img_attachment_id":0,"_seopress_social_twitter_img_width":0,"_seopress_social_twitter_img_height":0,"_seopress_redirections_value":"","_seopress_redirections_enabled":"","_seopress_redirections_enabled_regex":"","_seopress_redirections_logged_status":"both","_seopress_redirections_param":"","_seopress_redirections_type":301,"_seopress_analysis_target_kw":"","_seopress_news_disabled":"","_seopress_video_disabled":"","_seopress_video":[],"_seopress_pro_schemas_manual":[],"_seopress_pro_rich_snippets_disable_all":"","_seopress_pro_rich_snippets_disable":[],"_seopress_pro_schemas":[],"footnotes":""},"class_list":["post-94883","page","type-page","status-publish","has-post-thumbnail","hentry"],"_links":{"self":[{"href":"https:\/\/www.curejm.org\/es\/wp-json\/wp\/v2\/pages\/94883","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.curejm.org\/es\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.curejm.org\/es\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.curejm.org\/es\/wp-json\/wp\/v2\/users\/24"}],"replies":[{"embeddable":true,"href":"https:\/\/www.curejm.org\/es\/wp-json\/wp\/v2\/comments?post=94883"}],"version-history":[{"count":0,"href":"https:\/\/www.curejm.org\/es\/wp-json\/wp\/v2\/pages\/94883\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.curejm.org\/es\/wp-json\/wp\/v2\/media\/39606"}],"wp:attachment":[{"href":"https:\/\/www.curejm.org\/es\/wp-json\/wp\/v2\/media?parent=94883"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}